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Scottish Daily Record tell a teenagers story in graphic detail

Discussion in 'General ME/CFS News' started by Min, Oct 28, 2010.

  1. Min

    Min Guest

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    Heartbreaking story of a 15 year old with severe M.E. - and yet unbelievably the largest UK M.E. charity Action for M.E. support the trial of Lightning Process on children, and the patron of their associated children's M.E. charity, the Association of Young M.E., actively promotes LP in the media - do they honestly think that research money is best spent on telling children like this to yell 'stop!' at their debilitating physical symptoms?

    http://www.meassociation.org.uk/?p=2748
     
  2. Enid

    Enid Senior Member

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    Unbelieveable this still happens. Action for ME (biggest?) have a very mixed history. Just very sad this "torture" of this illness and the complete ignorance of (still) most. We have a major job here.
     
  3. Min

    Min Guest

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  4. free at last

    free at last Senior Member

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    This is just not right, im going to try and contact the family abd leave some links that they might not know about, like PR the WPI and anything else i can think of. Because all her blood tests were likely negative, ill bet thats the reason there sure she has no physical illness, in time this is going going to lead to another death this is so wrong
     

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