Science Media Centre expert reaction to Journal of Health Psychology’s Special Issue on The PACE Tri

[trishrhymes]

And retire. Let the adults start cleaning up the mess.

Trouble is, they've trained up a whole new generation to believe their nonsense - lots of nice kind clueless psychologists who think they are helping.

 

[user9876]

Whoops Let me guess ... one of them got undue credit for the paper, so they didn't really work together?

It would be interesting to look at the methodology of that paper and whether it uses subjective endpoints in an open label trial.

 

[Wonko]

And retire.

After being sued to remove all their ill gotten gains, money, reputation, property etc. all gained by blocking research into M.E., making money and reputations by devising and promoting "treatments" that harm patients, knowingly, conspiring with others to remove welfare support etc. etc. - not my prefered option but, it's the absolute most I can see happening

 

[Mrs Sowester]

Is that the best they can do?
It's not like they didn't have plenty of time to prepare.
I ask you, a bloke who didn't read the papers sufficiently to grasp even the most basic of arguments then just smeared the authors?

Sorry SMC, it's an F from me. You can't have it both ways, you either dignify an issue with a response or you don't, in this instance you just come across as pompous.

 

[Snow Leopard]

#COMParetrials

Is that the best they can do?
It's not like they didn't have plenty of time to prepare.
I ask you, a bloke who didn't read the papers sufficiently to grasp even the most basic of arguments then just smeared the authors?

Sorry SMC, it's an F from me. You can't have it both ways, you either dignify an issue with a response or you don't, in this instance you just come across as pompous.

But the guy said:

If you substitute ‘CFS’ for ‘autism’ and ‘PACE trial’ for ‘vaccination’ you see a familiar pattern…”

Okay, so the PACE trial = Vaccination and CFS = Autism. Hey, the false paper about autism being linked to vaccinations was also published in The Lancet! I see the pattern now! I guess this means The Lancet will retract the PACE trial paper right?

 

[Esther12]

Trouble is, they've trained up a whole new generation to believe their nonsense - lots of nice kind clueless psychologists who think they are helping.

Right. This scandal undermines so much, and that will play an important role in the attempts to cover it up.

 

[Barry53]

What struck me immediately earlier on today, and still does, is how many words are used to say nothing of any consequence at all. They still don't get it that best evidence can still be complete tosh if everything else is worse, and is a pathetic claim to have to fall back on. Etc, etc, etc ... If you have to have these folks as advocates, I think they'd be better to just keep quiet; they never seem to know when/how to stop digging.

And if you had had to hazard a guess beforehand where such PACE support might emanate from, the SMC would not really have been a big surprise would it!

 

[Wolfiness]

What struck me immediately earlier on today, and still does, is how many words are used to say nothing of any consequence at all. They still don't get it that best evidence can still be complete tosh if everything else is worse, and is a pathetic claim to have to fall back on.

I think "robust" here = "big and expensive"

 

[Esther12]

If was just reading one of the old SMC publications, and this line stood about to me:

CFS/ME is one of those illnesses plagued by violently to
irrational prejudices about cause and cure.

http://www.sciencemediacentre.org/w...ews-from-the-front-line-essays-on-the-SMC.pdf

Plagued by? Well I never.

 

[Barry53]

I think "robust" here = "big and expensive"

If these folks are really sure of themselves, then let them write an independently peer-reviewed critique and cite solid examples, rather than just vague assertions. As usual, no substance.

 

[jaybird1]

The SMC have just released another expert comment, this time on the cytokine article. The expert is Prof Cleare, well known for being linked to health insurance companies, Wessely school and as expert witness in court: http://www.meassociation.org.uk/2012/03/10654/

 

[Londinium]

Still, they've felt the need to rush out a press release criticising the cytokine study published today in PNAS by Montoya et al. A bad day for those in the SMC still trying to argue there's no possible way the BPS model might be flawed.

 

[Barry53]

Still, they've felt the need to rush out a press release criticising the cytokine study published today in PNAS by Montoya et al. A bad day for those in the SMC still trying to argue there's no possible way the BPS model might be flawed.

Might have been better I think for SMC to await some proper peer reviewed critique?

 

[Research 1st]

Reading the Science Moron Centre's disinformation leaflets is like flicking through the book 1984 and remembering the horrific future, is now.

 

[alex3619]

Hey, the false paper about autism being linked to vaccinations was also published in The Lancet!

With Richard Horton defending it for a decade.

 

[Snow Leopard]

With Richard Horton defending it for a decade.

Classic Richard Horton behaviour. He even defended the (now retracted) Macchiarini paper for a while (the guy who flagrantly violated ethical standards and his patients died).

 

[lilpink]

What struck me immediately earlier on today, and still does, is how many words are used to say nothing of any consequence at all

Imo the best papers are those which very simply expose the truth of the matter. Verbosity is usually a guise for dodgy goings on... such as, but not limited to, an attempt to impress; an attempt to suppress; an attempt to hide; an attempt to deceive.

 

[Sbag]

Prof James Coyne has just posted this on FB:




..

I think it's hugely exciting that James Coyne has replied with leading information - saying that JHP is not a trashy journal and implying that it reports true stories that have a solid background. Suggesting that there is another story that they should be looking into and if there wasn't anything to hide then why are people making such a fuss. Hopefully this will lead to them looking into it further and uncovering more deceptions.

 

[suseq]

The 'expert' responses provided by the SMC seem purposely disingenuous and provocative; possibly in the hope that they will provoke responses that validate the scurrilous and negative view they unethically continue to present of those who advocate for, or suffer with, this illness. All credibility appears to have been lost.

 

[CFS_for_19_years]

https://twitter.com/i/web/status/892094788710936580