The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
Discuss the article on the Forums.

Science Mag - Lobbyists seek new funds for chronic fatigue syndrome research

Discussion in 'General ME/CFS News' started by Bob, Aug 17, 2015.

  1. Bob

    Bob

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    ME Action (set up by Jen Brea) is making waves.

    Lobbyists seek new funds for chronic fatigue syndrome research
    By Emily Underwood
    17 August 2015
    http://news.sciencemag.org/biology/...n-new-funds-chronic-fatigue-syndrome-research

    Extracts:
    Read more: http://news.sciencemag.org/biology/...n-new-funds-chronic-fatigue-syndrome-research
     
    WillowJ, Snow Leopard, catly and 15 others like this.
  2. Bob

    Bob

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  3. searcher

    searcher

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    catly, snowathlete, Esther12 and 7 others like this.
  4. A.B.

    A.B. Senior Member

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    Some horrible comments on that page. Some person thinking the disease can be cured by sending patients to a military training program. :rofl:
     
    catly, Valentijn, Bob and 1 other person like this.
  5. Sasha

    Sasha Fine, thank you

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    The article allows comments?

    How convenient, because I have written a static page about how to comment on online articles, which is all about how to do it with dignity, grace, and impact, and get out the messages that we want (such as the desperate need for funding).

    It also explains how to deal with trolls and fools of the 'just go to a boot camp' variety. Basically, just talk right over their heads - we're addressing reasonable people, who are our target audience.

    As a community we did a spectacular job in the online comments on Brian Vastag's article in the Washington Post - the most civil comments section there ever, according to Brian!

    We must use these comments sections to win hearts and minds.
     
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  6. Sasha

    Sasha Fine, thank you

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    Click through and give that article the traffic, folks!

    And there's a MASSIVE AND AMAZING PIECE OF ADVOCACY buried in it. :cool:

    Can anybody tell me about Science Mag? I'm not familiar with it.
     
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  7. Bob

    Bob

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    It seems to be a popular source of general science news in the US and internationally.
    It's an off-shoot of the academic journal 'Science'.
    It's got an 'about' section if that's any help.
    Beyond that, I don't know much about it.
     
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  8. Sasha

    Sasha Fine, thank you

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    Just posted a comment.
     
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  9. Sasha

    Sasha Fine, thank you

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    The comments on the article are off to a bit of a shaky start. It would be great if people could post some sensible, positive ones and mark 'up' the good comments.
     
    Izola and Bob like this.
  10. Bob

    Bob

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  11. Sean

    Sean Senior Member

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    Bob the Tweeter.
    Can he tweet it?
    Yes, he can!
     
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  12. Bob

    Bob

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    :)

    (Does that make me a twit? Hehe.)
     
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  13. Sean

    Sean Senior Member

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    Who am I to judge?

    :rolleyes:
     
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  14. Bob

    Bob

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    :) Thanks... I think... o_O Hmm.. :confused:
    Oh well, I guess it wasn't quite a 'yes'!
    Hehehe...
     
    Sean likes this.
  15. Sasha

    Sasha Fine, thank you

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    It would be nice if a few more people posted comments on the article to thank the journalist and say what an important topic this is.

    It's a great article and the journo has done us a massive favour by linking to the scientists' letter. :)
     
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  16. Bob

    Bob

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    You can also email the journalist, to thank her, but I suppose we shouldn't bombard her with lengthy emails.
     
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  17. Sasha

    Sasha Fine, thank you

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    Better to make a public display of it in a comment, I think - nicer for her, and something to show her editors.
     
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  18. Sasha

    Sasha Fine, thank you

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    ...also, it helps in setting a nice and respectful tone for discussion and makes it feel like a safer place for people.

    There's a troll on that thread who has been encouraged, I think, by people replying directly to his posts and engaging with him, even though their posts are reasonable, so he's still posting and trying to get attention.

    Far better to ignore him and address the audience of reasonable (not to mention, sane) people who will be reading that article.
     
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  19. Valentijn

    Valentijn Senior Member

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    Oh, I wasn't really responding to him, even though I was responding to his comments. I know he can't be reasoned with, but it's still a nice opportunity to insert a couple strong tidbits of information for the general public. And to demonstrate that we're rational, polite, and well-informed, even when responding to a blatant turd :cool:

    He's also a bit of an odd case because most of his posts on other subjects aren't really troll-like, and he has a lot of followers on Disqus.
     
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  20. Sasha

    Sasha Fine, thank you

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    I understand your point and agree that he's a blatant turd but I suspect that he's been encouraged by the attention and has kept on posting, so that his posts now dominate that conversation. I realise that you were in a sense talking over his head but he'll have seen that you hit the 'reply' button on his posts and he'll have been rewarded by the engagement.

    I didn't mean to point the finger at you though, Val! You're not the only one who replied to him and I know that people do it because they hope to persuade others. But it's so easy to make the same points directly to the wider audience without replying to a troll, with none of the downside.

    I'm also concerned that while some people can address him without getting angry, others will see others responding and feel they should also pile on - but be less skilled at controlling themselves.

    Just my view, though. :)
     
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