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Scary Low Pulse Pressure

Discussion in 'Autonomic, Cardiovascular, and Respiratory' started by Sparrowhawk, Oct 2, 2013.

  1. SickOfSickness

    SickOfSickness Senior Member

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    I read something Dr David Bell wrote. "If the pulse pressure drops below 18, it is abnormal and blood would not circulate in the brain well. We routinely see in our patients with CFS blood pressures of 90/80, thus a pulse pressure of 10. The current record holder is a young woman with CFS whose pulse pressure fell to 6 mmHg before she passed out."
     
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  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Record holder, I love it! Maybe we should have our own Guinness Book of Records. :eek:

    Think a pulse pressure of 6 will make headlines? Not a chance, she "only" passed out, didn't die. I have had docs not believe that I had a pulse pressure of 8 even when I showed them the recorded data from a TTT. "Must have been a mistake," was the response.

    Sushi
     
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  3. taniaaust1

    taniaaust1

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    my own pulse pressure difference.. Ive seen quite a few times as low as 7. It wouldnt at all be surprised if that was the cause of some of my passouts rather then them all just be due to my POTS. My monitor thou I got one now which wont error out where most monitors do (80% of home monitors error out of me most of the time if Im taking my BP in the morning when first getting up.. Ive had 4 which would never work in that situation.. erroring out 8-9 times straight, 2 of those were ones I'd borrowed from others, completely reliable thou for their BPs).

    So I really had to seek out a monitor which could handle my BP and heart (top of range $130 it may of been more), I think thou this one still errors out when Im getting below 7 (I get the irregular heart beat symbol A LOT and it is cause my heart has gone erratic due to me standing).

    (One time I wondered if my BP for a few seconds had reversed. my neck vein was sucking in strongly with heart beats which was very noticable, I wasnt taking my pulse at the time, I didnt have a monitor on at the time so who knows what was going on on that occassion.. what else could cause like a sucking back flow in a large vein or artery??.. main one in neck. When that started happening, I wondered for a moment if I was about to drop dead.. I didnt faint thou, it was only haywire like that for 2-3 seconds.. would I have died if it hadnt stopped the vein sucking in as if my blood was being sent the other way?? had a major hole opened up in my heart???? anyway.. another mystery symptom and its only ever happened to me once)

    Sushi.. Ive had nurses/doctors blame monitors too.. the thing is I see the same results on several different monitors (hospital monitors also error out on me a lot). And unfortunately they will just take and take results (sometimes with them ending up trying to get my BP on 3 different monitors), till they see a result they like and then put that result down in ones hospital notes. Its complete biased towards our BP issues.

    I remember the time one of my specialists saw my BP jump from a healthy normal BP up to 170 within a minute of me standing (he checked this over and over to make sure it was correct). Orthostatic hypertension, something I'd been telling him for years I was having issues with but he'd ignored (he didnt take my BP standing till he'd been seeing me for 3-4 years and this had been the first time he had). The shock look on his face when he realised what he was seeing was right (unfortunately that ones had a stroke so I couldnt go back to him and the specialist he sent me too when he saw this happen, wouldnt believe things so Im still stuck with no dr monitoring this).

    My BP issues are on par with Dr David Bells worst ME patients but unfortunately I have no doctor dealing with this.. Im told it isnt possilble to have these results (I even took Dr David Bells article on these issues in ME/CFS to my appointment with the professor, only to have the professor say that Dr David Bells stuff must be wrong as it isnt possible).
     
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  4. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Let me guess - this guy must have PhD is SHITS (Sticking Head In The Sand).
     
  5. Sparrowhawk

    Sparrowhawk Senior Member

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    I just went and read the relevant Dr. Bell article. Pretty phenomenal about the reduced blood volume. Not sure how that is measured but along with NK cells looks like a viable bio marker to me.
     
  6. SickOfSickness

    SickOfSickness Senior Member

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    Article link if anyone wants it. http://www.prohealth.com/library/showarticle.cfm?libid=16797

    He has specific numbers in there. e.g. Abnormal is at least 10 points drop in one of the numbers.

    It has some other related papers referenced.
     
  7. taniaaust1

    taniaaust1

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    Little Bluestem.. this professor who said that to me is actualy the professor at one of my states biggest hospitals. (the hospital.. it was either the Royal Adelaide Hospital or Flinders Medical Centre..I cant remember which now.. actually had gotten rid of its tilt table due to it never being used so I couldnt have tilt table testing.. something which dont surprise me having an professor like that dealing with patients who have autonomic issues). it was actually a female professor

    ...

    Here's a question for people which Ive never seen any info on.. Is narrowing of the pulse pressure treatable in some way?
     
  8. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I don't think it is directly treatable but as treatments for dysautonomia, hypovolemia and ME/CFS bring improvements, pulse pressure should improve too.

    Sushi
     
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  9. Valentijn

    Valentijn Activity Level: 3

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    Yes, mine responds quite well to an NRI, Strattera.
     
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  10. Scott Brown

    Scott Brown

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    I raised this Low Pulse Pressure in a 2012 thread & didn't know this one existed. My wife's PP is still very low, and I wonder if this IS a marker for all ME sufferers? (a POLL would be nice).
     
  11. Valentijn

    Valentijn Activity Level: 3

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    To followup on myself, my pulse pressure also improves quite a lot on Yohimbe, which is available without a prescription in a lot of countries. It also helps a lot with constipation and muscle twitching (magnesium issues?) for some reason.
     
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