Phoenix Rising: The Gift That Keeps on Giving All Year Long
This holiday season Jody Smith turns her eyes to the people of Phoenix Rising and gives thanks for you all ...
Discuss the article on the Forums.

"Say it for ME" on helium - awareness campaign

Discussion in 'General ME/CFS News' started by Sasha, Apr 1, 2016.

  1. Sasha

    Sasha Fine, thank you

    Messages:
    12,782
    Likes:
    34,189
    UK
    Novel!

     
    ahimsa, Dolphin, mfairma and 7 others like this.
  2. Sasha

    Sasha Fine, thank you

    Messages:
    12,782
    Likes:
    34,189
    UK
    Not sure if you always have to do it with helium:

     
  3. shannah

    shannah Senior Member

    Messages:
    1,358
    Likes:
    1,631

    Over on youtube, the write up below the first video says you don't have to use helium.



    Published on Mar 31, 2016

    It's hard to say. It's harder to live with. Take part in the challenge, and help us spread the word about this chronic illness!

    To take part in the challenge, just record a video of yourself saying "Myalgic Encephalomyalitis" as many times as you can... ON ONE BREATH! Don't forget to nominate some others, and let me know when you're done!

    NB: You don't have to use helium. Though if you wish, you can think of other ways to make your video stand out... ;-)

    Check out Jon Campling's original vid here: https://youtu.be/eoOupY62rxc

    This challenge is not about raising money – it's about raising awareness. But if you WOULD like to donate to charities to support the victims and researchers of this debilitating disease, here are a few you could look at...

    http://www.actioncind.org/ (Canada – research & support)
    http://www.investinme.org/ (UK – research & support)
    http://smileforme.org.uk (UK – victim support)
    http://www.25megroup.org/fundraising_... (UK – support for extreme victims)
    http://www.meresearch.org.uk (UK – research)
    http://www.tymestrust.org/ (UK – support for younger victims)
    http://www.ncf-net.org (USA – research)
    http://www.mefmaction.com/ (Canada – research & support)
     
    Dolphin, MeSci, mango and 2 others like this.
  4. mango

    mango Senior Member

    Messages:
    905
    Likes:
    4,975
    this is great, made me very happy :):thumbsup:
     
    mfairma, hellytheelephant and Sasha like this.
  5. Snowdrop

    Snowdrop Rebel without a biscuit

    Messages:
    2,896
    Likes:
    10,089
    This is terrific. Posted a link on twitter.
     

See more popular forum discussions.

Share This Page