Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Save the Date for the Rare Diseases/Orphan Products Summit

Discussion in 'Action Alerts and Advocacy' started by *GG*, Sep 1, 2011.

  1. *GG*

    *GG* Senior Member

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    Concord, NH
    NORD will co-sponsor the 1st Annual Rare Diseases/Orphan Products Summit on Oct. 11-13, under the auspices of the Drug Information Association (DIA). Collaborating organizations include EURORDIS (the European Rare Disease Organization), FDA, NIH, and the Duke Clinical Research Institute. Register Here >


    Come and Meet...

    Francis Collins,Director of the National Institutes of Health (NIH)

    Michael Astrue, Commissioner of Social Security Administration

    Janet Woodcock, Director, FDA Center for Drug Evaluation and Research

    Mark McClellan, former FDA Commissioner

    John Crowley, Chairman and CEO of Amicus


    In addition to plenary sessions to which senior government, industry, and patient representatives are being invited to speak, there will be three tracks at the meeting:

    Track A will be for academic and industry investigators and will build on a three-day rare-disease investigator training course first offered in October 2010
    Track B will be for patients and patient organizations
    Track C will be for industry and the investment community
    Special attention will be paid to innovations in orphan product development such as biomarkers, registries, natural histories and use of social media. In addition, there will be opportunities for networking and for exhibitors.

    This international summit will provide a unique opportunity for all stakeholders in the rare disease and orphan product space to learn and to develop a joint agenda.

    http://www.rarediseases.org/news-events/news/2011-summit
     
  2. glenp

    glenp "and this too shall pass"

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    Vancouver Canada suburbs

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