Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Ryan Prior meets Senator Bill Cassidy after #MM to discuss new bill for disease-proportionate $$$

Discussion in 'General ME/CFS News' started by Sasha, May 30, 2016.

  1. Sasha

    Sasha Fine, thank you

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    https://www.facebook.com/CFSDocumen...661299431396/1161398057224381/?type=3&theater
     
  2. Snow Leopard

    Snow Leopard Hibernating

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    South Australia
    Very interesting indeed. I would say that we should not be concerned with strict relationship (given the variable measures of disease burden), but any clear outliers should get attention eg ME & CFS are underfunded by an order of magnitude and hence clearly need more attention and research capacity building.
     
  3. JaimeS

    JaimeS Senior Member

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    I agree, Snow Leopard. There should be a move towards hard data, but I think it should be *somewhat* flexible. For example, if there is an outbreak of illness X, more funding might be allocated its way temporarily, in a way that is completely independent of its prevalence or disease burden.

    -J
     
    Snow Leopard likes this.
  4. Roy S

    Roy S former DC ME/CFS lobbyist

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    Illinois, USA

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