Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
Discuss the article on the Forums.

Ron Davis, Ashley Haugen, Linda Tannenbaum and Raeka Aiyar at IiME #OMF

Discussion in 'General ME/CFS News' started by Janet Dafoe (Rose49), May 30, 2017.

  1. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    image.jpeg image.jpeg image.jpeg Hi Everyone!
    Ron and Ashley arrived in London today and were able to walk around London a little before collapsing in their hotel. Linda arrived later tonight. I am posting little updates on twitter, but I thought I'd post my tweets here too, with photos they send me. Ashley will be tweeting on the @OpenMedF twitter account. She is also goiing to make a video of Ron at some point. I'm home with Whitney. I'm sad not to be able to go! It's hard. I'm going to try to add a couple of photos now using my phone! :)
     
    Last edited: May 30, 2017
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  2. lafarfelue

    lafarfelue Senior Member

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    Thanks so much for the update! So great to see these photos :):thumbsup:

    Sorry you couldn't go too. It's so great that Whitney has you there. <3
     
    MEMum, MastBCrazy, Jan and 18 others like this.
  3. Jennifer J

    Jennifer J Senior Member

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    Thank you, @Janet Dafoe (Rose49)! Those are such nice pictures of Ron and Ashley. I love the first one. Sorry you couldn't go either. :hug:
     
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  4. Mary

    Mary Senior Member

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  5. JamBob

    JamBob Senior Member

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    Lovely photos - I'm glad Ron and Ashley arrived safely. It's a real shame that you and Witney can't be here too. It must be so hard being left behind (though I'm sure Witney's feeling super grateful that you're there with him).

    I really hope you guys will soon be in a position to make it over here to England as a whole family :).
     
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  6. Aroa

    Aroa

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    ohhh very nice Pictures !!!! I used to enjoy travelling to London.... Hope we can all join you next year .

    Thank you for posting them and to Ashley for the conference updates.
     
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  7. UKmum

    UKmum

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    A very warm welcome to the UK. We need all the open minded, compassionate intelligent discussion we can get about this illness after all the recent MUS/Muppets malarkey here.
    I hope they get a chance for some more sight seeing x
     
  8. Emily L

    Emily L Dog sitter

    Wow these look like lovely people! Enjoy your time in the U.K.! It is where I'm from!
     
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  9. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    image.jpeg Ron, Ashley, Linda and Raeka having breakfast with Swedish scientists Bergquist and Blomberg right now.
     
    Last edited: May 31, 2017
  10. AshleyHalcyoneH

    AshleyHalcyoneH Open Medicine Foundation

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    IMG_4215.JPG Unfortunately we are having some twitter issues for OMF! But @Janet Dafoe (Rose49) will be tweeting and we will be posting updates here and on Facebook for now!

    Ron is touching up his slides with Raeka and we are about to head inside!
     
    Last edited: May 31, 2017
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  11. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    That's MOLD on Ron's tie!
     
  12. AshleyHalcyoneH

    AshleyHalcyoneH Open Medicine Foundation

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    Due to the confidential science discussed during the first two days of this meeting we cannot share talk specifics but we are starting off the day with a talk by Vicky Whittemore from the NIH!
     
    Last edited: May 31, 2017
    MEMum, mymichelina, lilpink and 40 others like this.
  13. justy

    justy Donate Advocate Demonstrate

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    It's amazing to see Ron and team in my home town 9although I no longer live in London). Sorry you cant be there - we all know how hard it is to see loved ones going off on exciting journeys and not being able to join them.
    Thanks for keeping us all updated x
     
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  14. Marc_NL

    Marc_NL .

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    Thanks, there's some great info on the laptop screen, this gives me new hope :p


    Edit: I wasn't serious in that I could read what's on the screen (people were worried). I will try to be more serious in the future :)
    Doesn't mean others cannot read it of course.


    .
     
    Last edited: May 31, 2017
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  15. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Seriousness not required! You made me laugh. :)
     
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  16. A.B.

    A.B. Senior Member

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    I think it says "something something signalling in ME/CFS"

    The Invest in ME conference and news from the OMF make me feel like a kid on christmas.
     
    Last edited: May 31, 2017
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  17. emsho

    emsho

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    How exciting! Thanks for sharing :). Love seeing photos of doctors from OMF and those that attend the Invest in ME. Somehow makes them more real ! My mum is heading to the conference later this week, wish I could go with her.
     
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  18. dangermouse

    dangermouse Senior Member

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    Wonderful :) Heartwarming. Makes me feel so very happy seeing these pictures and hearing updates. Sorry you couldn't come too @Janet Dafoe (Rose49) and I can only imagine how hard it is for you. I'm sending best wishes to you and Whitney :hug: Thanks for sharing this.
     
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  19. Jo Best

    Jo Best Senior Member

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  20. trishrhymes

    trishrhymes Save PR. Sack the President of the Board.

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    Just imagine when we're all well enough to go. They'll need to hire the Olympic Stadium.

    Thinking of you and Whitney, @Janet Dafoe (Rose49) . Hope you're not feeling too lonely, and are managing to get enough sleep. I feel blessed that my daughter and I, though both housebound with ME are still able to talk and laugh together. I hope for the same for you and Whitney sometime soon.

    :hug::hug::hug:
     
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