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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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You must have missed the Andrew Scull hate piece on Medscape a while back then where he equated it with ME and both with hysteria. It's been heavily edited but it still highly offensive.I've never heard of Morgellons disease - so thanks to Rod for bringing this to our attention
To be honest I'm not always crazy about seeing people react the way I feel I was forced to react to this. Seems whiny at times, depending on the situation. With the crap we're absurdly plastered with, I decided to make sure this wouldn't just disappear.
https://twitter.com/ssppeerroo/status/662511652638732288
I don't take it that seriously. Just a troll. But, hey. 'Death threats' meme gets spun in a nasty campaign against us. Rocket scientist publishes two hit pieces saying we're the ones who are irrational psych cases who harass people...and do things like...issue death threats.
The irony is rich, really.
I tweeted again, just to show that this person hit & run with a few nasty comments--ironic, again, because it shows someone doing almost exactly what we're accused of.
https://twitter.com/ssppeerroo/status/662512962779947008
I was discussing this with someone on Twitter who advised 'don't feed the trolls.' Well, I certainly wouldn't advise responding to this person. But the more of this stuff they do, while denouncing us for allegedly doing what they're actually doing, the more people may just take notice.
Interesting tweet from Sir Simon on Liddle that there was a deliberate strategy between them to shock and awe...where have I heard that refrain before?
Ecoclimber said:Simon Wessely @WesselyS 4h4 hours ago
Rod Liddle's latest piece on#CFS in Spectator is designed to shock but doesn't awe and needed fact checking. Not helpful
No, I think she's caught you right. There's no implication in that tweet that Wessely had a hand in the article. To say it's designed to shock is just stating the obvious.@Sasha You misunderstood. I was NOT referring anyway, SW's involvement in the PACE trial nor its design but to the disasterously malicious hit piece on this patient population which this thread references. His tweet came out today after Liddle's second article in the Spectator yesterday which I believe he was referencing.
@Sasha You misunderstood. I was NOT referring in anyway, SW's involvement in the PACE trial nor its design but to the disasterously malicious hit piece on this patient population which this thread references.
Inexcusable tabloid journalism! Calls have been made for SW to disavow the article since he is mentioned in the article. There have been comments instigated by this piece for patients to be 'put down'. Is it not a requirement for a journalist to contact SW since his name, the PACE trial and the patient population will be associated with such an article before publishing? How could SW have known that the intention of the author's article was designed to shock. I can see how one can state the fact that it was his own impression from reading the article. But you have to also take into consideration, the co-ordinated attack by the principals of the PACE trial and their ilk to paint those within the patient community who disagree with the PACE trial results with a broad brush of militancy, crazies, vexatious and other disparaging and demeaning remarks.This is from a previous occasion (I'd hesitate to say "last time") but the author has just tweeted it again:
http://www.huffingtonpost.co.uk/jason-reed/rod-liddle-and-me_b_1235199.html
My thoughts exactly.
I suspect that Wessely and Sharpe etc welcome the extreme articles in the media right now. What Michael Sharpe did was to be interviewed by a journalist and publicly correct the articles that say 'CFS' is not real and that all that's needed to recover is exercise and positivity. So then Sharpe sounded reasonable and moderate by comparison, whilst claiming the moral high ground, whilst praising PACE CBT/GET. . Crafty.
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