1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Did You Have Yourself a Crashy Little Christmas?
Jody Smith may have dodged a holiday bullet this year. She's hoping. Only time will tell. How did you fare?
Discuss the article on the Forums.

Rituximab story in Huffington Post

Discussion in 'Rituximab: News and Research' started by Sasha, Oct 27, 2011.

  1. Sasha

    Sasha Fine, thank you

    Messages:
    8,812
    Likes:
    8,276
    UK
    Here's the link (please do visit the site - the more traffic they get, the more they'll keep reporting on us). It's a sympathetic piece - it starts:


    "Chronic fatigue syndrome wrecks people's lives. It does so physicially, socially and economically. Appearing "normal" yet not being able to think or work causes enormous hardship compounded by many doctors who think the illness does not really exist -- a position health and disability insurance companies are more than happy to endorse. "​


    Comments are allowed - there are 13 already. I've added a couple. This is a good platform - let's have meaty, heartfelt, non-ranty stuff on there! Let's give them some facts we want out there. I've mentioned the Norwegian govt apology and called for NIH funding.
     
  2. Roy S

    Roy S former DC ME/CFS lobbyist

    Messages:
    447
    Likes:
    473
    Illinois, USA
    From the perspective of a 41 year patient and early activist, I think the Huffington Post article is one the best I've ever seen. An M.D. hitting these points over and over is great advocacy.

    "Chronic fatigue syndrome wrecks people's lives. It does so physicially, socially and economically. Appearing "normal" yet not being able to think or work causes enormous hardship compounded by many doctors who think the illness does not really exist http://www.huffingtonpost.com/john-falk/chronic-fatigue-syndrome-_b_829651.html-- a position health and disability insurance companies are more than happy to endorse."


    "Second, this study goes a fair way to knocking off the strong belief in the medical community that CFS is "only in people's heads.""


    "The biggest change may occur with public acceptance and awareness. It's one thing to live with a chronic disease that controls much of your life; it's another to live with an illness many do not believe exists."
     
  3. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

    Messages:
    2,490
    Likes:
    1,175
    NYC (& RI)
    nice article!
     
  4. SOC

    SOC Senior Member

    Messages:
    5,369
    Likes:
    6,492
    USA
    Wonderful article! We need many more articles like this in front of the public -- well thought out, frank, informative.
     
  5. madietodd

    madietodd Senior Member

    Messages:
    2,483
    Likes:
    1,744
    East Coast, USA
    Great article; thanks for posting, Sasha.
     
  6. Battery Muncher

    Battery Muncher Senior Member

    Messages:
    228
    Likes:
    256
    Yes - thank you for posting this excellent piece of journalism.
     

See more popular forum discussions.

Share This Page