Hi, I am London, England based and wondered if anyone knows of any doctors in Europe administering Rituximab for CFS? Also does anyone know whether the doc in California treating with Ritux is having the same success as the Norwegians? I'm seriously considering giving it a go. Thanks, Tom
I only know of the Norwegians in Europe. The ME Association in the UK hasn't been able to put together a study as yet. You will find a couple of threads here on this forum from patients being treated by Dr K. Too soon to tell about the USA doctor as he has treated so few patients and it is early days for most if them.
Thanks for reply. Yes and I doubt the Norwegians or any European docs will offer it privately until at least phase III shows benefit. The UK i doubt will ever put on a ritux trial, too gung ho for our CBT indoctrinated docs! I can't afford heading over to the US but may have to make it happen as the only relief I've ever had from my CFS has been from antidepressants, and just two and in the process have got through most of the BNF menu now so at a dead end! With what seem to be a number of subsets of CFS ritux I imagine won't work for everyone. And i'm not aware of any blood results or clinical onset that suggest one is more likely to benefit. So it is quite an investment one has to make not just financially. But you've gotta be in it to win it (health) even if it might be a gamble!
