Dr. Bateman answers IOM questions from the community: Part 2
Clark Ellis brings us Part 2 of an interview with Dr. Lucinda Bateman, where she answered questions posed by the patient community …
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Ringing in ears

Discussion in 'Neurological/Neuro-sensory' started by meadowlark, Jan 28, 2012.

  1. Tristen

    Tristen Senior Member

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    Exactly what it is. I've had other types of Tinnitus over the years from different kinds of trauma (loud sounds), and toxicities (aspirin), and this ME related Tinnitus is not at all the same thing...it's disease related and not at all "normal".
     
    physicsstudent13 likes this.
  2. runner64

    runner64

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    Gosh, I have had it for 16 months when I got my first CFS symptom and now have many. I just started antibiotic therapy a few days back so we'll see. I am on no other meds. I won't take any but pop the occasional bendryl or gravol to lengthen the worse shortest non refreshing sleep I've ever had. The tinnitis is totally neuro from this. Whooshing like a conch shell up to your ear, screeching, tv high pitch sound, Bagpipe long note sound. All layerd 24/7. Unreal. Some of you guys had it 10 years. Sorry...........and ho no..............man.
     
  3. niall

    niall

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    I have had a pulsating sound in my ears for this past year. This is a new symptom as I did not have it from 2004 when I first developed CFS until last year when it began. Dr. Klimas told me that it is "neuro-inflammation"
     
  4. runner64

    runner64

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    Okay so it's inflammation, neuro inflammation. I'm glad to get educated here from all of you. Now that makes sense. Because, my brain literally feels fried. This can't be good for the brain that's for sure.
     
  5. Snowdrop

    Snowdrop Vexacious, thy name is PACE

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  6. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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  7. philpot

    philpot

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    I have had background noise for about 5 years. Mine tends to be affected more by significant colds, rather than anything else, in that if there is any significant change it normally happens after/during a significant cold. However, if someone offered me the option to have only noise and in return they would remove all my other symptons then I would gladly take it. :) Regards.
     
  8. pemone

    pemone Senior Member

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    I also have the 24x7 solid high frequency tone in my ears, and this all started for the first time in my life when I came down with the CFS symptoms, about five months ago. I also wonder if it is lower blood flow to the brain, or inflammation.
     
  9. Little Bluestem

    Little Bluestem Senescent on the Illinois Prairie ❀❤✿Ƹ̵̡Ӝ̵̨̄Ʒ✿❤❀

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    I developed tinnitus about 10 years into my ME. It is multiple tones, usually no more than moderately loud. It gets louder with allergies or PEM.

    I find that ginkgo biloba reduces the volume. 40 mg three times/days is better than 60 mg twice/day for me. I am now taking 30 mg four times/day, but don’t notice any difference.

    Very rarely, tinnitus is caused by a tumor in the brain. It is a good idea to see an ear/nose/throat specialist to get it checked out.
     
  10. Jammy88

    Jammy88 Senior Member

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    Hi,
    since my symptoms started I've always had tinnitus. I can't get rid of it, although it gets a bit better after taking Vitamin C or other supplements. In my case, I'm pretty sure it's neuro-viral related.

    Cheers
     
    physicsstudent13 likes this.
  11. physicsstudent13

    physicsstudent13 Senior Member

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    hearing loss is an emergency and you should go to the ER. tinnitus according to an ENT means your ear cells are DYING and you should go see an ENT.
    I started taking 80mg a day of prednisone and I've regained some hearing. I kind of feel like I should treat the hearing loss, because I'm handicapped and won't be able to have an academic career now
     
    Last edited: Apr 16, 2015
  12. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I'm not sure who you are addressing since no one has posted in this thread for 6 months, but these are individual health concerns that need to be evaluated with your doctor--there is no general recommendation like
    Sushi
     
    RML, Valentijn and Jammy88 like this.
  13. Snowdrop

    Snowdrop Vexacious, thy name is PACE

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    I've had tinnitus for nearly half a century. It hasn't been accompanied by hearing loss.
    Sometimes I have trouble processing what I'm hearing but I can hear just fine.
    In fact I can hear things others can't.
     
    Valentijn and Jammy88 like this.
  14. Jammy88

    Jammy88 Senior Member

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    Melatonin (3-5 g before bedtime) works good, easing tinnitus symptoms and sometimes resolving them. No need to take prednisone, which is a quite dangerous drug - if taken for a long time.

    Best
     
  15. Jammy88

    Jammy88 Senior Member

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    Just giving a brief update: tinnitus was a big issue in the first months after disease onset.
    It was accompanied by (Sometimes severe) dysautonomia symptoms, thus linked to poor blood flow. Neuroinflammation was found after CSF analysis in my case.
    Supplements and vitamins have been working good, and now my tinnitus is less severe. Vitamin C and Melatonin were the most beneficial ones, but I've been taking a lot of Vit. B complex, too.
     
  16. physicsstudent13

    physicsstudent13 Senior Member

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    I seem to have poor blood flow to the right ear and don't know what I should do. The ENT surgeon professor told me that the standard of care is steroids. So I started steroid tablets of prednisone
     
  17. rosamary

    rosamary

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  18. Jammy88

    Jammy88 Senior Member

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    @physicsstudent13 , I see. It is true that standard of care is steroids, however they might be harmful in the long run. That's why you might want to add supplements and vitamins to your diet. I believe you'll benefit from taking the right ones.
     
  19. Jammy88

    Jammy88 Senior Member

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    @physicsstudent13
    Also, gingko biloba is a supplement commonly used to increase blood flow. It can help to treat vertigo and similar symptoms. If your tinnitus is blood flow-related, you might wanna try it.
     
  20. pemone

    pemone Senior Member

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    The correct human dose for melatonin would be around 300 microgram (mcg) NOT 3 mg!!!!

    Some nice graphs explaining reasons for that dosing here:
    http://www.longecity.org/forum/topic/64197-which-melatonin-should-i-buy/
     

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