Discussion in 'Latest ME/CFS Research' started by Effi, Apr 27, 2017.
When will these numpties learn to not use the Oxford criteria?
It looks like this is the same old review, just with another evasive response to problems that have been identified with it. Discussion going on here: http://forums.phoenixrising.me/inde...cise-therapy-for-cfs.45282/page-3#post-842101
Two problems, if you use flawed data you will get flawed results and you do not see what you don't want to find.
The review itself is not new, simply the letters in discussion.
The fact that the self-report questionnaire results at end-of-trial could be biased due to non-blinding seems to be lost on the reviewers. One would predict that the bias would diminish at long term followups, which is exactly what happened (eg non significant results for physical functioning, self perceived health at followup.)
When they actually want to study our disease, rather then obfuscating it.
Which for those involved means ""13th of Never".
If you search the full text for Robert Courtney and Tom Kindlon, you will find detailed critical comments by us. Replies have also been posted which I find to be weak.
To be 'fair' - most of these articles reviewed are AIUI oxford criteria, you simply can't change them to not oxford.
Alas that of course reduces the point rather, and perpetuates the myth that oxford is useful as other than an intentional dilution.
When they stop getting funded for it.
What's the Oxford criterion?
And yeah, of course! All we need to do is get off our lazy butts and work out a bit. Why didn't any of us think of that before???? - Because we collapse in a heap and it puts us back months, that's why!
Seriously, do these people think we enjoy enforced permanent "rest"? I certainly don't.
Have these "scientists" no understanding of PEM at all? For some of us, it's During Exercise Malaise, as well as Post. Why don't they listen?
Why would they want to cure us when there's so much money in "treatment" ?
Hi @Tom Kindlon,
That link is taking me to a blank page :-(
They literally have no concept of PEM, its not in the oxford criteria!
They actually do think this, they believe (with societal prejudice added in) that anyone who is less accomplished them them is lazy, unmotivated and a leech on society.
Hence the antipathy to a guaranteed minimum income, automation and offshoring may be taking our jobs but helping those displaced is evil because they are pathetic unworthy lazy humans.
Works for me.
Jigsaw laughs, hollowly.
None of this is good for my stress levels. Hey, maybe that's the idea - kill us all off by getting us so stressed out by their idiocy that we spontaneously implode. End of problem!
My iPad quite often won't even load a link, far less produce an actual page!
Never, because then they would have to mention PEM as one of the key symptoms, which they have not needed to do here .
You can also try a Google Site Search
Separate names with a comma.