Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Rethinking chronic fatigue syndrome (The Saturday Paper, Australia)

Discussion in 'General ME/CFS News' started by Kati, Aug 5, 2016.

  1. Kati

    Kati Patient in training

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    A sympathetic article from Australia which includes patient experience and recent research from the Staines/Marshall-Gradisnik research

    https://www.thesaturdaypaper.com.au/2016/08/06/rethinking-chronic-fatigue-syndrome/14704056003560

    Exerpt:
     
    RL_sparky, taniaaust1, Hutan and 23 others like this.
  2. Living Dead

    Living Dead Senior Member

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    Does anyone know the name of these "threat receptors"?
     
  3. Comet

    Comet I'm Not Imaginary

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    Nice article!
     
    Hutan and Kati like this.
  4. Snow Leopard

    Snow Leopard Hibernating

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    South Australia
    The studies that were done were gene-candidate studies, which are well, junk studies and the results are not statistically significant when controlling for multiple comparisons, and so I don't find any of these genetic findings exciting, but...

    Here are the recent genetic studies from this team:
    http://www.ncbi.nlm.nih.gov/pubmed/27346947
    http://www.ncbi.nlm.nih.gov/pubmed/27099524
    http://www.ncbi.nlm.nih.gov/pubmed/27245705
    http://www.la-press.com/examination...rphisms-snps-in-transient-recep-article-a4824
    http://www.la-press.com/examination...rphisms-in-acetylcholine-recept-article-a4862
    http://www.la-press.com/genotype-fr...astatin-m3-ion-article-a5387?trendmd-shared=0

    Mostly Transient receptor potential ion channels, acetylcholine receptor...
     
    Living Dead and duncan like this.
  5. Scarecrow

    Scarecrow Revolting Peasant

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    "Threat receptors" suggest toll-like receptors.
     
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  6. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    great article.

    I note the author of that article also does documentaries. Im thinking about contacting her to ask her if she's ever thought of doing one on people in Australia who have severe ME/CFS. I'd like to contact her and tell her that I've gone to jail at times due to not coping at home and being unable to get the support I needed for the ME (I now have an abusive support coordinator who appears doesnt believe in this illness).

    I think a mind blowing documentary on the aussie situation could be made starting from some of the Aussie ME history with Alison Hunter.. and how people here today arent being given support.
     
    Roy S and Battery Muncher like this.

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