New era for ME/CFS research as top cytokine study attracts media headlines
The immune systems of patients who have recently developed ME/CFS look markedly different from those who have been ill for much longer, according to a major new study from Drs. Ian Lipkin and Mady Hornig at Columbia University. This shift in immune function hadn’t been seen before.
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rest,rest,rest!?

Discussion in 'Lifestyle Management' started by justy, Sep 12, 2010.

  1. justy

    justy Senior Member

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    Thanks everyone for your input -it is so appreciated.
    Lots of wors of wisdom and encouragement from everyone. Taking regular rests in the day does seem to be helping more and also accepting i was probably pushing it too much before and making myself feel more ill. I am learning more about what my body does and doent want - unortuantely its not in agreement with my brain!
    Fighting the depression caused by sitting on your own all day is hard. as long as i keep listening to my body i seem to be ok. Not improving but able to do small tasks without feeling like i am going to expire. and that is a definate improvement. I am looking for more improvement/stability before i satrt t increase more such as going out for longer etc.
    O
     
  2. justy

    justy Senior Member

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    sorry i posted before i had finished.
    Sick of cfs- i have to say i agree with you about the not saying what the heck and pushing it. I have tried just doing what i feel like, and always end up doing more, especially going out, and feeling much worse. During this relapse -which has lasted 2 years so far i have been in that continously ill and dead place. I am beginning to come out of that a bit now and it seems to be due to resting more. I still have a massive problem with upping the amount i do as soon as i feel a little bit better. Some days now, even though i caqnt do more, i feel more normal just at rest.
    Thank you also for sharing your experiences with me. One of the problems i have is that i have to get up at 7 am to get the kids to the school bus, and i am never ready to get up. I always sleep longer on the weekends when there is no alarm. Like you i also sleep evry afternoon now. I dont believe that daytime sleeping is bad for M.E sufferers. After all i am just going for a sleep, not spending all day sleeping!

    I decided to add in 5 minutes of yoga stretches a day, which has helped with my stiffness, and it seems i can tolerate it at that level for now.
    Anyone got any ideas why i feel better now i am taking more vitamin C? i take it in 2 doses.
     

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