1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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Resource Base for "Working"

Discussion in 'Finances, Work, and Disability' started by Cort, Jun 24, 2009.

  1. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    Websites

    • CiCoach: The Resource For Professionals With Chronic Illness - Rosalind Joffe's experience with two autoimmune diseases prompted her to devote her career to assisting people with chronic illnesses be successful in the workplace. The CiCoach website provides a newsletter, coaching opportunities, a very active blog "Working With Chronic Illness - Thoughts on Navigating Your Career", her book, more resources, etc.
    • Financial Medicine For the Chronically Ill - Christina Gombar, former financial services executive, now ME/CFS patient and writer, exposes the dark underbelly of the financial/medical system with regards to the chronically ill in her blog.
    • Advocacy for Patients with Chronic Illness - Jennifer Jaff, a lawyer with Crohn’s disease, founded a nonprofit organization to help chronically ill people with work/disability issues.
    • Social Security Administration ‘Ticket to Work Program’ - designed to enable people receiving Social Security disability to continue working.
    • Amendment to encourage employers to accommodate people with the kind of multiple, cyclical and unpredictable disabilities typical of autoimmune disorders (and ME/CFS)

    Books


    Articles


    Got More Resources? E-mail me at 512mailbox@gmail.com
  2. Jody

    Jody Senior Member

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    Canada
    Pretty cool.

    Don't suppose you have any Canadian resources?
  3. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    Fraid not - love to get some though...need an enterprising Canadian to dig some up...
  4. Jody

    Jody Senior Member

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    Canada
    LOL

    Hmmm. Do I hear a light veiled hint? (ok, there's no veil)

    I'd love to be able to step up, but at this point I am at the starting gate of looking for work myself. :) My one writing gig looks like it has come to an end and I am back to square one.

    Once I get some work, though ... who knows ...

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