The Real ME: A Stock Photography Resource for the Media
We’ve all seen them in the news stories about ME/CFS: the guy in a suit at the office, yawning; the beautiful woman sitting at her desk with her immaculate make-up and elegantly coiffed hair, hand to her head and looking slightly pained.
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Resource Base for "Working"

Discussion in 'Finances, Work, and Disability' started by Cort, Jun 24, 2009.

  1. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    Websites

    • CiCoach: The Resource For Professionals With Chronic Illness - Rosalind Joffe's experience with two autoimmune diseases prompted her to devote her career to assisting people with chronic illnesses be successful in the workplace. The CiCoach website provides a newsletter, coaching opportunities, a very active blog "Working With Chronic Illness - Thoughts on Navigating Your Career", her book, more resources, etc.
    • Financial Medicine For the Chronically Ill - Christina Gombar, former financial services executive, now ME/CFS patient and writer, exposes the dark underbelly of the financial/medical system with regards to the chronically ill in her blog.
    • Advocacy for Patients with Chronic Illness - Jennifer Jaff, a lawyer with Crohn’s disease, founded a nonprofit organization to help chronically ill people with work/disability issues.
    • Social Security Administration ‘Ticket to Work Program’ - designed to enable people receiving Social Security disability to continue working.
    • Amendment to encourage employers to accommodate people with the kind of multiple, cyclical and unpredictable disabilities typical of autoimmune disorders (and ME/CFS)

    Books


    Articles


    Got More Resources? E-mail me at 512mailbox@gmail.com
     
  2. Jody

    Jody Senior Member

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    Pretty cool.

    Don't suppose you have any Canadian resources?
     
  3. Cort

    Cort Phoenix Rising Founder

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    Fraid not - love to get some though...need an enterprising Canadian to dig some up...
     
  4. Jody

    Jody Senior Member

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    LOL

    Hmmm. Do I hear a light veiled hint? (ok, there's no veil)

    I'd love to be able to step up, but at this point I am at the starting gate of looking for work myself. :) My one writing gig looks like it has come to an end and I am back to square one.

    Once I get some work, though ... who knows ...
     
  5. Rowena Ilagan

    Rowena Ilagan

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    Thank you for sharing these resources. I have had ME/CFS, fibromyalgia, and multiple chemical sensitivities for over 4 years now. I am just dipping my toe into the part-time work (remote mostly, editing, writing, and social media). It is a struggle and found that I get more symptoms (or more susceptible to catching a bug here and there) because of the work. I am interested in learning about other ways to bring in income while managing a chronic illness like ME/CFS. What other passive sources of income have other patients developed?
     
    Jennifer J likes this.

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