1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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Researchers Tie Gulf War Illness to Brain Damage

Discussion in 'General ME/CFS News' started by Sparrowhawk, Nov 10, 2013.

  1. Sparrowhawk

    Sparrowhawk Senior Member

    West Coast USA
    ...with implications for ME/CFS. This is from March 2013. Why hasn't this gained traction in the discussions I've seen here of GWI, the OMI contract, etc.? Did I just miss it?


  2. alex3619

    alex3619 Senior Member

    Logan, Queensland, Australia
    This is one of the reasons we can't trust the IOM decisions. It has been discussed, though not in detail. They had a highly selective interpretation of the evidence. They will argue theirs is evidence based. Many would argue they are misusing the idea of evidence based.

    Its important to recall that these kinds of claims come and go, and are often not properly replicated, fail replication, or are misunderstood. That is why the IOM will argue an evidence based process, and prioritize research that meets their tick-box criteria.

    In MS finding a reliable diagnostic tool changed medical perception. In gastric ulcers having a cure for most ulcers eventually changed perception, but it took a decade and a huge fight from patients. The medical profession simply failed to pick up on H. pylori research for a very long time.
    Valentijn, SOC, aimossy and 3 others like this.
  3. SickOfSickness

    SickOfSickness Senior Member

    I like having these topics brought up again, for anyone who missed them the first time.

    I did find a thread for you, with not many replies. http://forums.phoenixrising.me/inde...show-brain-changes-in-gulf-war-illness.22439/

    As well as http://forums.phoenixrising.me/inde...logical-evidence-of-gulf-war-illnesses.23764/ and http://forums.phoenixrising.me/inde...logical-evidence-of-gulf-war-illnesses.23765/

    This is related and from 2011. http://forums.phoenixrising.me/index.php?threads/brain-problems-found-in-gws.12226/
    Sparrowhawk likes this.

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