1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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First Direct Evidence of Neuroinflammation - 'Encephalitis' - in ME/CFS
A small study with just nine patients has captured the attention of patients and researchers alike after reporting direct evidence of inflammation in the brain of ME/CFS patients. The finding was one of the highlights picked out by Professor Anthony Komaroff in his IACFS/ME...
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Researchers probe link between autism and gastrointestinal problems

Discussion in 'Other Health News and Research' started by waiting, Apr 9, 2013.

  1. waiting

    waiting Senior Member

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    Tristen, Waverunner and Enid like this.
  2. AbbyDear

    AbbyDear

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    Makes sense to me. Is what I have felt and thought for years. I believe gut reaction generates immune response, and this causes problems throughout the body including brain. Problem is very few docs realize this connection. Hopefully, they can document this, and maybe someday, this information will be taken seriously, and universally.
  3. xchocoholic

    xchocoholic Senior Member

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    I'm not sure how this info is any different from all the biomed research already available. DAN and
    the Autism Research Institute have been saying this for decades now. Googling leaky gut autism should
    provide all the links necessary to see this research.

    Personally, I started learning about this by reading
    Jenny Mc Carthy's first book, Louder than words. I enjoyed her humorous approach to this delicate
    subject. Healing the 4 a's was a good read. I've heard that the one about starving brains is very
    well written but never read it.

    Tc ... X
  4. Old Salt

    Old Salt Rowing the boat

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    The medical industry, led by Big Pharma, is well aware of the potential of gut research to eventually very negatively impact their bottom line. The key to possibly all degenerative disease is in the gut.
  5. waiting

    waiting Senior Member

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    It may not be new ... while I've read about the connections many have made between the 2 fields, I haven't read the research in depth, so I wouldn't really know.

    What impressed me about the article was, given the similarities between ME and autism, I couldn't help but compare the 2 fields in terms of the research funding, international co-operation, and public interest that autism enjoys and ME lacks. I was struck by the relative dearth of even public interest (this was a lecture series for later-life learning!), never mind research funding, in ME. There were references to so many large research studies (the Beijing Genomics Institute is sequencing the DNA of 10,000 children with autism ... 10,000! ), and there was significant joint U.S./ Canada advocacy ... have you ever heard of an ME Advocacy group described as an "advocacy powerhouse", as the U.S. Autism Speaks advocacy group was described?!

    I don't begrudge the autism field any of this ... but when you compare the biological similarities, the contrast in these other differences is stark. It sure highlights the PR problem that ME has.
  6. xchocoholic

    xchocoholic Senior Member

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    This paragraph is what I found disturbing.

    A great deal of info in already available on this connection. As far as which bacteria may or may not be playing a role in autism that I haven't heard but the autism bio med community is well aware of the gut connection. I hate to see anyone try to re-invent the wheel here.

    I "think" all integrative / functional doctors treat adults with ME and / or CFS the same way autistic kids are treated.
    They use CDSAs, etc etc to dx leaky gut and offer treatments. I see an integrative doctor and although most of my symptoms are gone, I haven't been cured of my ME / POTS. Imho, I have a lot of permanent medical issues now from waiting 15 years to try this approach. So, it's doubtful I can recover.

    tc ... x
  7. Tristen

    Tristen Senior Member

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    Northern Ca. USA
    Dr Wakefield was surely onto something!
    waiting likes this.
  8. waiting

    waiting Senior Member

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    Yeah, maybe that was just the reporter's lack of knowledge...

    I'm glad that most of your issues have been resolved through your doctor, but the ME/POTS are tough ones. Have you read The Patient Advocate's blog? I can't recall how many years his daughter has been ill for, but she has been showing significant improvement from MAF treatments. Here's a post from a few months ago, but there are several posts on this issue.

    http://cfspatientadvocate.blogspot.ca/2012/10/maf-314-professor-marco-ruggiero.html

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