Requesting photos for #MillionsMissing project on Instagram

[ahimsa]

I'm posting a new thread for this because I thought it might get lost in the Fundraising forum.

There's a new Instagram account for the #MillionsMissing protest:

https://www.instagram.com/millionsmissing/

@ellesbelles is asking folks to send in a photo to illustrate what they've been missing since getting ill. For more details see this message

 

[Jennifer J]

@ahimsa, thank you for posting this. Another great idea! I hope others can send in their photo of what they've been missing since they've been ill, too.

Thank you @ellesbelles and everyone for working: to make us visible, for funding for research, for good studies, and in many different ways to make it better.

 

[MEPatient345]

Thanks @ahimsa.. Here is the message again:

PR folks.. Would love your participation in the #MillionsMissing Instagram account.

Would love to represent the full picture, and we have more women so far, so more men, children, would give a broader image of the disease.

https://www.instagram.com/millionsmissing/

Send a photo of you doing something you love and miss back when you were well to millionsmissing25@gmail.com.

Include the year you got sick, your location, and any other information you'd like to include about what you miss, and your life then and now. Have a look to get ideas.. I try to combine stories with facts about the disease.

Thanks so much in advance! Pls share!

 

[ahimsa]

I sent in a photo from my hiking days. I also used it to make a poster (tweeted it today, pinned tweet):



(click on thumbnail to enlarge)

I've been mostly offline this week (family visit planned months ago, before protest) but have managed to to a bit of posting and tweeting.

And I've scheduled a bunch of tweets for May 25th. That morning I'll be driving to the airport. When I get home I'll be doing a lot of resting and recovery from the family visit! Speaking of which, need to get offline again.

 

[Old Bones]

I sent two photos with the following text:

"These photos were taken almost 30 years ago while on our honeymoon in Austria and Switzerland. It was inconceivable that 2 1/2 years later, my active sporting life would be ended by an illness I'd never heard of -- ME. I'm one of the lucky ones -- my husband has stayed by my side despite devastating lifestyle losses.

I'm missing: My active outdoor pursuits
My husband is missing: His hiking partner

Realizing that you have more photos of women than men, the second photo could "scratch out" the man's boots, implying he is the one missing."