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Requesting photos for #MillionsMissing project on Instagram

Discussion in 'Advocacy Projects' started by ahimsa, May 18, 2016.

  1. ahimsa

    ahimsa Sick since 1990

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    Oregon, USA
    I'm posting a new thread for this because I thought it might get lost in the Fundraising forum.

    There's a new Instagram account for the #MillionsMissing protest:

    https://www.instagram.com/millionsmissing/

    @ellesbelles is asking folks to send in a photo to illustrate what they've been missing since getting ill. For more details see this message
     
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  2. Jennifer J

    Jennifer J Senior Member

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    Southern California
    @ahimsa, thank you for posting this. Another great idea! I hope others can send in their photo of what they've been missing since they've been ill, too.

    Thank you @ellesbelles and everyone for working: to make us visible, for funding for research, for good studies, and in many different ways to make it better.
     
  3. Silencio

    Silencio Senior Member

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    Thanks @ahimsa.. Here is the message again:

    PR folks.. Would love your participation in the #MillionsMissing Instagram account.

    Would love to represent the full picture, and we have more women so far, so more men, children, would give a broader image of the disease.

    https://www.instagram.com/millionsmissing/

    Send a photo of you doing something you love and miss back when you were well to millionsmissing25@gmail.com.

    Include the year you got sick, your location, and any other information you'd like to include about what you miss, and your life then and now. Have a look to get ideas.. I try to combine stories with facts about the disease.

    Thanks so much in advance! Pls share!
     
  4. ahimsa

    ahimsa Sick since 1990

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    Oregon, USA
    I sent in a photo from my hiking days. I also used it to make a poster (tweeted it today, pinned tweet):

    WeAreTheMM_Hiking2.jpg

    (click on thumbnail to enlarge)

    I've been mostly offline this week (family visit planned months ago, before protest) but have managed to to a bit of posting and tweeting.

    And I've scheduled a bunch of tweets for May 25th. That morning I'll be driving to the airport. When I get home I'll be doing a lot of resting and recovery from the family visit! Speaking of which, need to get offline again. :)
     
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  5. Old Bones

    Old Bones Senior Member

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    I sent two photos with the following text:

    "These photos were taken almost 30 years ago while on our honeymoon in Austria and Switzerland. It was inconceivable that 2 1/2 years later, my active sporting life would be ended by an illness I'd never heard of -- ME. I'm one of the lucky ones -- my husband has stayed by my side despite devastating lifestyle losses.

    I'm missing: My active outdoor pursuits
    My husband is missing: His hiking partner

    Realizing that you have more photos of women than men, the second photo could "scratch out" the man's boots, implying he is the one missing."

    ClimbAustria.jpg BootsSwitzerland.jpg


     
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