See the link on www.actup.org for ME/CFS. It is on the second page now. The Admin very kindly has given advice which I will take and post a request for assistance to the sites suggested. http://www.actup.org/forum/section/news-1/index2.html These people KNOW how to get attention and funding. Have a look and maybe post your own statement on this disease and what has been done to us for 30 years. We need to educate the other Retrovirus group and ask for their input and assistance. Have to think out of the box and these people DID do that and got the attention and funding they needed. Let's hope we all benefit from the HIV antivirals out there now. Fingers crossed.