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No Longer Naive in the Ways of The Beast
After having lived for years with ME/CFS, Jody Smith learned there's more to this beast of an illness than she realized, and that what might help one person may not help others ...
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(Reporting of adverse reactions) "In Reporting Symptoms, Dont Patients Know Best?"

Discussion in 'Other Health News and Research' started by Dolphin, May 24, 2010.

  1. Dolphin

    Dolphin Senior Member

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    Posted on Co-Cure on April 14:

    I thought this was interesting. Also make sure to check out the graphic.

    It is all about the issue of reporting adverse reactions to drugs.
    Of course, in the ME/CFS area, the outcome measures used to make the claim that GET and CBT based one GET are evidence-based are patient report outcome measures which the researchers are happy to use; but then the same researchers tend to play down the significance of patients reporting adverse reactions to the same treatments (although this happens more in the lay media/outside of the literature, as I recall - reports of adverse reactions don't tend to be mentioned too much in the literature. Peter White did try to play it down in the Journal of Rehabilitation Medicine, claiming the patients must not have done the NICE version of GET although as Ellen Goudsmit has pointed out, there are two different versions of GET in NICE!)]

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