Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
Discuss the article on the Forums.

"Reporter Excoriates Chronic Fatigue Study: I Stopped at 14,000 Words-Enough Was Enough"

Discussion in 'General ME/CFS News' started by Kyla, Nov 18, 2015.

  1. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

    Messages:
    721
    Likes:
    4,221
    Canada
    http://alumni.berkeley.edu/californ...oriates-chronic-fatigue-study-i-stopped-14000

    Excerpt:
     
    Raines, WillowJ, LisaGoddard and 33 others like this.
  2. Esther12

    Esther12

    Messages:
    8,454
    Likes:
    28,545
    Only just started reading, but already I like the fact that it looks like he wrote that headline.
     
    WillowJ, moosie, ahmo and 1 other person like this.
  3. JohnnyD

    JohnnyD Senior Member

    Messages:
    200
    Likes:
    475
    My comment .. of appreciation.

    Dear David Tuller, on behalf of my sister, who has suffered for 26+ years with this hideous disease, we cannot thank you enough. From your earlier articles we always knew you ‘got it’ and showed a lot of promise if you’d just keep writing. You’ve exceeded our expectations… you are approaching, if not already there, hero status! Thank you so much!
     
    Mary, meadowlark, moosie and 7 others like this.
  4. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

    Messages:
    1,980
    Likes:
    5,023
    USA
    Brilliant, well-written piece by David Tuller. :star::trophy::rocket:
     
    WillowJ, Kyla, Mary and 2 others like this.
  5. leela

    leela Slow But Hopeful

    Messages:
    3,222
    Likes:
    7,225
    Couchland, USA
    Wow, he just keeps it coming...and coming...total hero!
     
    WillowJ, Mary, meadowlark and 4 others like this.
  6. meandthecat

    meandthecat Senior Member

    Messages:
    204
    Likes:
    489
    West country UK
    A beacon in a long dark night.

    Thank you Mr Tuller
     
    ukxmrv, Mary, meadowlark and 6 others like this.
  7. Sasha

    Sasha Fine, thank you

    Messages:
    12,780
    Likes:
    34,125
    UK
    I just added a comment, with a link to the new petition to the HHS:

    http://my.meaction.net/petitions/call-for-cdc-and-ahrq-to-investigate-pace

    If anyone else posts, I hope they'll mention it.

    Be aware that this comments section removes all your paragraph breaks and faces the reader with a wall of text. So keep it short, or no one will read it! I'd have posted less if I'd known.
     
    WillowJ, Kyla, Mary and 5 others like this.
  8. Sasha

    Sasha Fine, thank you

    Messages:
    12,780
    Likes:
    34,125
    UK
    There are some terrific, moving comments on that article, by the way.
     
    moosie, Bob, aimossy and 1 other person like this.
  9. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

    Messages:
    1,074
    Likes:
    4,322
    Toronto, Canada
    Just added short simple comment.
     
  10. Kina

    Kina

    Messages:
    10,128
    Likes:
    17,226
    Sofa, UK
    I am loving it -- the comments are excellent too. :):):)!!!!!
     
    Daisymay, WillowJ, Kyla and 4 others like this.
  11. LisaGoddard

    LisaGoddard Senior Member

    Messages:
    164
    Likes:
    213
    So refreshing to see a new mood especially among reporters and scientists.
     
    Daisymay likes this.

See more popular forum discussions.

Share This Page