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Remember Michelle Akers?

Discussion in 'General ME/CFS Discussion' started by Ayaju, Jul 12, 2013.

  1. Ayaju

    Ayaju Senior Member

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    She led the US Women's Soccer team to victory in the 90s; she collapsed on the field; she had CFS.... she could have been the CFS community's Michael J. Fox, I suppose; so could Laura Hillenbrand, the author of Seabiscuit. Anyway, I just saw Michelle Akers on Katie and she looks glowingly healthy. She was helping to promote a movie, I think, about women's sports. I was hoping against hope that she'd mention CFS; she didn't. I googled her and all I could find was that she's coming back to soccer, but the article didn't even mention her health at all. I found an old article saying that she had Epstein Barr... which the article called Chronic Fatigue Syndrome! Maybe that's it then; she never had CFS? I'm happy for anyone who recovers from any chronic health thing, but I admit I'm a bit disappointed she is not going to be a voice for us, and that she isn't a source to share how she got well.

    Judy
    ggingues and Allyson like this.
  2. Hugocfs

    Hugocfs Senior Member

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    Almost no one wants their name associated with this crap disease. I know when I get over it that I won't go around telling anyone that I had chronic fatigue syndrome. Sad to say, but you might be waiting a long time for a high profile advocate for chronic fatigue syndrome to emerge.
  3. peggy-sue

    peggy-sue

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    I'm afraid I am filled with complete disbelief when I hear that folk with "ME/CFS" have recovered.
    I assume they had something else and were misdiagnosed.
    beaker, biophile, AbbyDear and 2 others like this.
  4. Ayaju

    Ayaju Senior Member

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    Exactly... she never had it! She had Epstein Barr! Back then they mistook it for CFS!

    If and when I recover? I'm telling the world! Judy
    beaker, rosie26, ggingues and 2 others like this.
  5. Valentijn

    Valentijn Activity Level: 3

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    Obviously we need to stop waiting for famous people get ME/CFS, and work on ME/CFS patients becoming famous :cool:
    beaker, greebo, rosie26 and 10 others like this.
  6. peggy-sue

    peggy-sue

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    I'll be telling the world if I ever recover - and how.
    leela, rosie26, ggingues and 4 others like this.
  7. MeSci

    MeSci Activity level: 6

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    Me too!
    leela, rosie26 and ggingues like this.
  8. caledonia

    caledonia

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    Well it's going to be kind of hard to account for 13 missing years of my life. Somebody's going to have to be told.;)
    beaker, leela, rosie26 and 2 others like this.
  9. taniaaust1

    taniaaust1 Senior Member

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    I dont think we can ever expect sports people to go around much and tell people how they had this illness if they recover. They have to get picked for teams or whatever, things which could impact them if they consistantly went arouind telling everyone how sick they were. They more then any of us would need to get across how well and in good health they are (not to be telling people they had a mystery illness which could hit them again at any time). It just isnt in the best interest for their careers.
    rosie26, Allyson and Valentijn like this.
  10. Dreambirdie

    Dreambirdie work in progress

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    I remember that they publicly ridiculed Akers when she first got sick and told the media that she had CFS. I think that's in the movie, I REMEMBER ME.

    I rarely tell people I have ME/CFS unless I know them well. I've had too many mean and condescending comments come my way about it. I may mention that I have an immune disorder or a neuro-immune disease, but I never say I have ME/CFS.
  11. Ayaju

    Ayaju Senior Member

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    I avoid telling people too because I'm so done with rejection! But I hope to be a spokesperson one day.

    I'm surprised to hear people still calling CFS an immune disorder when it's been proven to be an enterovirus?
  12. Allyson

    Allyson Senior Member

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    Yes it is hard for peeps in the public eye ;

    Australian footballer Alistair Lynch wrote a book about his illness/career and says anytime he mentioned it in the media he was inundated with requests for info and etc. so it is a lot to ask anyone who is ill to take on when they may be struggling to manage life anyway.


    Ally
  13. MeSci

    MeSci Activity level: 6

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    I don't think it has been proven to be any kind of virus, and there is good evidence for it being autoimmune in at least some cases. There may be viruses involved in some cases too, but finding the presence of something doesn't necessarily mean that it is the cause. It can sometimes mean that an illness makes it harder to clear infections. For example, people with HIV are more likely to suffer from a range of infections than those without, due to impaired immunity.
  14. Ayaju

    Ayaju Senior Member

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    I'm basing this on what Dr. John Chia told me, and his articles on the Internet. His research, plus similar prior research in the UK identified CFS as an enterovirus that lives deep and hidden in the stomach wall. He said CFS is absolutely not an autoimmune disease. But the CDC doesn't recognize this yet. In fact, as can only be expected from the CDC they basically shun him. I believe him. I'd like to help spread the word.

    He mostly doesn't prescribe Equilibrant (Chinese herbs) to his patients that have autoimmune diseases... that's why the jury is still out on whether I should take it, as I have Hashimotos and possibly RA.

    What do you think?

    Judy
  15. caledonia

    caledonia

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    Watch the Methylation Made Easy videos (the link is in my signature), then tell me what you think.
  16. Ayaju

    Ayaju Senior Member

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    Fascinating! It sounds like doing a methylation protocol in conjunction with taking the herbs to kill off the enterovirus would be productive. (see part 3 of the video).

    Caledonia, have you taking the methylation lab tests?
  17. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Does Dr. Chia have a theory on how people acquire this enterovirus? Most particularly, could it come from food? I have wondered if the dinner I ate the evening before I got the initial 'flu' that started all of this was the cause.
    beaker likes this.
  18. peggy-sue

    peggy-sue

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    I've not heard of the uk research, have you any idea who it was?
    I was also under the impression that the work of Elaine de Fritas which got hushed up and locked away showed an electron micrograph of a retrovirus in a mitochondrion.
    I'm not at all convinced it's gut-related, and I am also of the impression that "leaky gut" is just a theory, it's not something which has been proven to exist.
  19. MeSci

    MeSci Activity level: 6

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    I am of the impression that it has. See here for example:

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2886850/

    and here is a paper relating intestinal permeability, and autoimmunity, to ME/CFS:

    http://integrativehealthconnection....1/Leaky-gut-in-CFS-treatment-of-leaky-gut.pdf
  20. peggy-sue

    peggy-sue

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    I think we were at cross purposes, MeSci, it was the comment from Judy I was asking about.

    "I'm basing this on what Dr. John Chia told me, and his articles on the Internet. His research, plus similar prior research in the UK identified CFS as an enterovirus that lives deep and hidden in the stomach wall. He said CFS is absolutely not an autoimmune disease."

    the "similar prior research in the uk" was what interested me.

    I did find this on a general search - which seems to confirm that leaky gut isn't something mainstream or taught in medschool, or is even something very much is known about.
    Not a chance of getting something like that investigated here!

    http://www.webmd.com/digestive-disorders/features/leaky-gut-syndrome

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