I've been thinking that one thing that the researchers should really want are patients with a reliable before/after response to a trigger. For example, if <certain food> reliably triggers significant brainfog and fever 14.5 hrs later, a blood sample before and after would hopefully show clear changes that would identify the metabolic process involved. The researchers probably have enough examples of exercise-induced PEM, but maybe some others would help. It seems to me that one reliable before/after sample set might be more useful than sampling hundreds of patients at random times.
I respond reliably and positively (reduces symptoms) to T2 (every 21 days). I haven't done extensive testing on peroxynitrite scavengers, but they seem to reliably make my symptoms much worse. Cumin seems to block PEM, but I'm still testing the reliability and dosage/duration etc. LDN blocks perceived muscle aches, but I think that's a secondary symptom, so probably not all that useful for research.
If some researchers thought it would be useful, I'd be willing to visit the local lab and have samples taken and shipped.
If there are any researchers reading this, is this something that would be useful?
I respond reliably and positively (reduces symptoms) to T2 (every 21 days). I haven't done extensive testing on peroxynitrite scavengers, but they seem to reliably make my symptoms much worse. Cumin seems to block PEM, but I'm still testing the reliability and dosage/duration etc. LDN blocks perceived muscle aches, but I think that's a secondary symptom, so probably not all that useful for research.
If some researchers thought it would be useful, I'd be willing to visit the local lab and have samples taken and shipped.
If there are any researchers reading this, is this something that would be useful?