Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
Discuss the article on the Forums.

Release of the IOM report - live webcast-2/10/2015

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Nielk, Feb 10, 2015.

  1. Nielk

    Nielk

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    This is a reminder of the public release event for the Institute of Medicine’s report Beyond Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome: Redefining an Illness to be held tomorrow, February 10th, at 11 AM EST.

    For those attending in-person, the event will be held in Keck 100 at 500 5th Street NW, Washington DC, 20001.

    A link to the webcast of the report briefing will be available on the meeting page, found here. A free downloadable PDF of the report will be available at that time by visiting www.iom.edu/mecfs.

    Thank you for your interest and we look forward to your attendance.
     
    CantThink, Anne, ukxmrv and 1 other person like this.
  2. Sidereal

    Sidereal Senior Member

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    I have a bad feeling about this.
     
  3. A.B.

    A.B. Senior Member

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  4. Sean

    Sean Senior Member

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    So it starts in one hour?
     
  5. Nielk

    Nielk

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    Yes
     
    Anne and Sean like this.
  6. caledonia

    caledonia

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    Cincinnati, OH, USA
    Anyone getting a feed yet?
     
  7. Lynn

    Lynn Senior Member

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    I just clicked on the website. It says

    "Oh no! It appears as though your event host has reached the audience limit on their Blyve account. Sorry about that!"

    Do you think that means we all won't be able to see the webcast?

    Lynn
     
  8. Nielk

    Nielk

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    Yes. I'm seeing picture with music. Starting in 8 mins.
     
  9. caledonia

    caledonia

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    Cincinnati, OH, USA
    Ok. There is a feed. You have to press the play button.
     
  10. Lynn

    Lynn Senior Member

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    Then in my my never surrender-never give up mode I pushed the arrow to play the video. Now I can see people setting up. so perhaps there is no issue.
     
  11. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    I "joined" 20 minutes early. Just got this message:

    "Oh no! It appears as though your event host has reached the audience limit on their Blyve account. Sorry about that!"

    I'll keep trying though.
     
  12. Nielk

    Nielk

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    Press the arrow button
     
  13. Lynn

    Lynn Senior Member

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    I think the report is already there. I.m looking at the presentation now.
     
  14. user9876

    user9876 Senior Member

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    moderated with many others
  15. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    Yay! Still shot of the room, no sound. Suggestions?
     
  16. dancer

    dancer Senior Member

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    I was now able to open some of the pdf documents they posted... jumped to the bottom to see what they recommend as a new name. Here's what I found:

    The Institute of Medicine (IOM) committee recommends the name
    systemic exertion intolerance
    disease (SEID)
    for this disease. This new name captures a central characteristic of this disease—
    the fact that exertion of any sort (physical, cognitive, or emotional)—can adversely affect patients in
    many organ systems and....
     
  17. Nielk

    Nielk

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    Starting!
     
  18. Sidereal

    Sidereal Senior Member

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    L'engle and John Mac like this.
  19. Kina

    Kina

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    Sofa, UK
    Already butchered the name ME, not a great start :(.
     
    GracieJ, Sushi, justy and 2 others like this.
  20. deleder2k

    deleder2k Senior Member

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