So I am in a very good place, I am basically able to do anything (Except aerobic like running and heavy exercise but I can walk for miles ok). My question is am I the only one that can go from being 80s% to paralyzed in matters of minutes then back to about normal???? I have symptoms Most OI / Pots issues, I had a collapsed/paralyzed episode was down for about 5minutes and took the midodrine and was out of the collapsed in about 10minutes. When I say I collapse, I cannot move, talk or even maintain my eyes open, My brain feels absolutely numb and like is asleep (like when you do not move your fee for a while). So I wonder if what happens is something to do with OI and not CFS?!?!?