1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
The ePatient Revolution
Ryan Prior shares his experience and his thoughts from attending the Stanford Medicine X Conference as he contemplates the rising of the ePatient Revolution ...
Discuss the article on the Forums.

Rejected by SSDI, What next?

Discussion in 'Finances, Work, and Disability' started by Hugocfs, Nov 5, 2013.

  1. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    1,612
    Likes:
    2,691
    USA
    @SDSue Wow, I am so surprised that your doctor would say that to social security based on a brief trial of one medication that has now been discontinued! What was she thinking?!!!
    Last edited: Aug 25, 2014
  2. SDSue

    SDSue Florida

    Messages:
    460
    Likes:
    970
    Florida
    Edited for content.
  3. minkeygirl

    minkeygirl Is Jim Jones alive and well on PR?

    Messages:
    2,251
    Likes:
    1,437
    Left Coast
    @SDSue I just want to add what @geraldt52 said. Get an attorney that is ME/CFS literate. You can find them. Maybe contact Bernie Kansky for some ideas. They are out there.
  4. minkeygirl

    minkeygirl Is Jim Jones alive and well on PR?

    Messages:
    2,251
    Likes:
    1,437
    Left Coast
    @taniaaust1 Hugo got disability, started getting peptide injections and doing Gupta's protocol. Last I heard from him he was back at work almost full time. He still had to pace himself and had some rough days but he was managing.

    He told me he would not be back among the unwashed PR masses. (my words not his)
    taniaaust1 likes this.
  5. JalapenoLuv

    JalapenoLuv *****

    Messages:
    299
    Likes:
    86
    unknown
    There are two initial paper steps. You probably have your first rejection so are on to the second paper step which I think it called a reconsideration. You can file that yourself but it must be done within the time limit. Having a good attorney or advocate can help you strengthen your case in the initial paperwork and can speed up your case. There is a website called Disability Key where they can help you with that without having to fork over the fee. If you lose the second paper determination you'll definitely need an attorney to deal with the ALJ judge.
  6. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,989
    Likes:
    4,968
    Sth Australia
    @SDSue Im thinking about you. I hope you are further along some how in getting it. You will be so relieved once you do.
    ahimsa and SDSue like this.
  7. PNR2008

    PNR2008 Senior Member

    Messages:
    437
    Likes:
    678
    OH USA
    I doubt if this will help you except give you a good laugh but when I applied in 1989, I was rejected the first time of course. The second time with no lawyer but a well known doctor, I was approved. There was no code for CFS then so I got the approval on Virus-non-AIDS.

    Some would say a mental disability might have been better.
  8. SDSue

    SDSue Florida

    Messages:
    460
    Likes:
    970
    Florida
    Thanks so much! I've hired an attorney and am awaiting a hearing. Like everything with ME/CFS, this isn't an easy process.

See more popular forum discussions.

Share This Page