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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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A tentative agenda and a link to register for the open session of the first meeting of the Institute of Medicine study on Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome are now available at the meeting webpage. Members of the public may participate in person or via webcast. Persons who plan on attending the meeting in person are requested to register in advance prior to January 22, 2013. Registration for persons attending the meeting in person will be open until seating capacity of the conference room is reached. All participants may participate via webcast. The webcast will be available on the meeting webpage on January 27, 2014.
The draft agenda includes approximately 45 minutes for public comment. The committee anticipates that there will be fifteen slots available for in-person attendees to provide comments. In order to allow adequate time for each commentator, public comments should each be limited to three (3) minutes.
It would be most useful if comments are focused on the following question: "What is the most important aspect or information that this committee should consider throughout the course of the study?"
Attendees may sign up for one of these slots when you register to attend the meeting in-person. The slots will be allocated on a first-come first-served basis.
Webcast participants may also submit comments via the email (mecfsopensession@nas.edu). All written comments for committee consideration will be included in the Public Access File created for the study and should not include any personal medical information.
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>">See the Tentative Agenda >>
First come first served Wally. Be there early I would suggest. Only 15 3 minute slots are being allowed. Good luck x
First come first served Wally. Be there early I would suggest. Only 15 3 minute slots are being allowed. Good luck x
I was under the impression that the slots will go first-come first-served in registration online, not attendance at the meeting . . . . am I wrong?
My interpretation is that it's first-come-first-served in terms of how quickly you register online.Attendees may sign up for one of these slots when you register to attend the meeting in-person. The slots will be allocated on a first-come first-served basis.
Attendees may sign up for one of these slots when you register online to attend the meeting in-person. The slots will be allocated on a first-come first-served basis.
Why? You can read the email as well as me. I have highlighted the relevant bits in bold. You register to speak at the door when you arrive. If there is a slot still available then you get to speak for 3 minutes. Those on the agenda have already been granted slots for 5-7 minutes talk time. Seems straightforward - but I am not a lawyer thank the gods
"Webcast attendees may also submit comments via the email (mecfsopensession@nas.edu). All written comments will be included in the Public Access File created for the study, and should not include any personal medical information."Also - the IOM project page has some FAQs on it http://www.iom.edu/Activities/Disea...elitisChronicFatigueSyndrome/2014-JAN-27.aspx
Why? You can read the email as well as me. I have highlighted the relevant bits in bold. You register to speak at the door when you arrive. If there is a slot still available then you get to speak for 3 minutes. Those on the agenda have already been granted slots for 5-7 minutes talk time. Seems straightforward - but I am not a lawyer thank the gods
Attendees may sign up for one of these slots when you register to attend the meeting in-person. The slots will be allocated on a first-come first-served basis.
Lawyers
You can take the lawyer out of the courtroom, but you can't take the courtroom out of the lawyer. Something something injunction mumble mumble.Lawyers