1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Andrew Gladman puts hyperparathyroidism under the microscope, exploring what the disease is, how it can mimic ME/CFS in presentation and how it is treated.
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Registration for December 10 -11, 2013 CFSAC Mtg - Webinar

Discussion in 'Upcoming ME/CFS Events' started by Wally, Nov 22, 2013.

  1. Wally

    Wally Senior Member

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    Registration is now open for the December CFSAC Meeting. This meeting will be held as a webinar and you are required to register for the meeting if you want to watch online and/or provide public comment by phone, in writing, or by prerecorded video - comments must be filed by 11/29/2014. Only 500 participants will be allowed to register for this meeting.

    waiting and aimossy like this.
  2. Wally

    Wally Senior Member

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    Urgent Request for Information

    Does anyone know what time today (November 29th) is the latest I can upload video for public testimony at the December CFSAC meeting?

    I am up to my eyeballs in alligators these days and I just realized that the deadline for public comment is today. I don't believe the notice included a specific time other than saying November 29th. I live in California and would argue that I should get at least until midnight tonight (PST) or technically I think the deadline should extend to Hawaiian time (because I just may need to fly there tonight to get in out of the cold). ;)

    Yes, I am doing this very last minute. But this is no thanks to the federal government who has given such a short turn around time for cognitively challenged and ill patients to get their two cents in to try to "participate" in this "meeting". :( :mad: I am sure they must be violating all kinds of disabilities rules and regulations or at the very least not playing very fair with this patient population! :eek:

    [​IMG]
  3. Andrew

    Andrew Senior Member

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    Los Angeles, USA

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