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Hyperparathyroidism: An Often Overlooked Differential Diagnosis to ME/CFS
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reduce inflammatory cytokines, Importance of Diet

Discussion in 'General ME/CFS Discussion' started by Martial, Feb 16, 2014.

  1. xchocoholic

    xchocoholic Senior Member

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    I was trying to say that I NEED to spike my glucose if I'm exerting myself. I can't physically or mentally keep up any other way.

    For ex I won't remember what washers I put laundry soap in or which dryers I'm using. Doing laundry wipes me out. Sugar keeps me more alert.

    As you can imagine I was relieved when I finally figured this out.

    I only do this when I'm exerting myself. Sugar spikes make me feel horrible if my body isn't needing it.

    From what I've seen my reaction to sugar or fruit juices is the same reaction diabetics get when crashing from hypoglycemia. My bg hasn't been recorded as less than 60? But I'm still getting the crash. I respond completely to the diabetic hypoglycemia treatment. OJ or glucose tablets. I have to sit for a few minutes too. I'm not sure if that's part of the diabetic treatment plan. My body won't recover completely if I don't rest.

    I don't know how common this is for pwcs. I have hyperinsulinemia. Dr Myhill said chronic hypoglycemia is common in pwcs tho.

    I'd love to find a doctor who knew exactly what to look for.

    Tc ... x
  2. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Have you seen a specialist about your hyperinsulinemia?
    xchocoholic likes this.
  3. xchocoholic

    xchocoholic Senior Member

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    No. Not yet. I haven't heard good things from others who travelled down this path so I wasn't excited about going there.

    Got any ideas on who to see in the US ?

    I actually would anticipate a hospital stay being required since I have seizures. My last gtt+ insulin test made me feel nauseas, faint and soooo sleepy I could barely keep my eyes open. On the previous gtt test I was so pale from fasting that the lab called my dr to make sure it was ok to run the test.

    And recently I've started having a weird movement disorder from getting poked with a needle. The ER staff was confused when I said I couldn't stop moving. They finally gave me drugs.

    I'm weird. Lol. Tc. X
  4. xchocoholic

    xchocoholic Senior Member

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    I was really struggling and feeling guilty when I thought these foods were bad. I'm a perfectionist when I'm on a mission. My labs show that I over produce gluten antibodies so that helped me stay motivated. It turned out that I was beating myself up for nothing. :)

    It's funny when I first learned about the paleo low carb diet and read all the benefits I thought it was the answer to my hypoglycemia problem. Nope.

    I tried the MAD diet for my seizures. That didn't work for me either. I was pale and felt faint all the time.

    I'm assuming that as a celiac with multiple auto immune problems that this is just one more.

    Snickers ... yum. :) ... x
  5. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    No idea as I am in the UK. Hopefully someone else can help.
    xchocoholic likes this.
  6. NilaJones

    NilaJones Senior Member

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    Thanks! I never knew!

    Do you have a similar trick for keeping fats and carbs eaten in daytime from making me dozey? I have had to tightly ration them, for decades. mostly just green veg and a little protien, until i m ready to crash for the evening -- then I eat the real food.
  7. adreno

    adreno 3% neanderthal

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    Don't you think those crashes are related to spikes in blood sugar?
    Lillybelle likes this.
  8. Lillybelle

    Lillybelle

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    Hi Justy I'm very familiar with Dr Myhill's site and Im sure she has tested you for hypothyroidism. All I can say is I was really sick with it and cfs with no bloods showing thyroid probs for at least 12 months. I ate a very low calorie diet (lower than now) very high in veggies moderate protein/carbs only brownrice occasional pasta and rye/spelt bread,
    Since being on Thyroxine (this hasnot made me feel better or less tired btw)have lost 17 kilos.
    I eat more calories and fat now than I ever did.

    Sometimes hypo just does not turn up in blood tests. Good luck!
  9. Lillybelle

    Lillybelle

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    Structured Water Review by scientists
    http://worldwidescam.com/viberealscience2.htm
    MeSci likes this.
  10. Lillybelle

    Lillybelle

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    This is likely to be controversial but interesting.


    This video by TEDX features Christina Warinner
    gives balance to the Paleo diet being the ultimate for modern man/women. How close is the Paleo diet prescribed now to what was really eaten then.
    The answer not much.
    Published on 12 Feb 2013

    TED Fellow Christina Warinner is an expert on ancient diets. So how much of the diet phad the "Paleo Diet" is based on an actual Paleolithic diet? The answer is not really any of it.

    Dr. Christina Warinner has excavated around the world, from the Maya jungles of Belize to the Himalayan mountains of Nepal, and she is pioneering the biomolecular investigation of archaeological dental calculus (tartar) to study long-term trends in human health and diet. She is a 2012 TED Fellow, and her work has been featured in Wired UK, the Observer, CNN.com, Der Freitag, and Sveriges TV. She obtained her Ph.D. from Harvard University in 2010, specializing in ancient DNA analysis and paleodietary reconstruction.
    justy and Radio like this.
  11. justy

    justy Senior Member

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    Hi Lillybelle, I had a trial of thyroxine with Dr Myhill a few years ago. It unfortunately made me much worse and I GAINED weight on it. Last year was diagnosed by Dr Skinner with Hypo by symptoms not just bloods. Tried Armour thyroid which made me feel better at first and then crashed really badly and have not got back to the level I was at before last summer unfortunately. We now know my adrenals are not working well, low cortisol, low DHEA. cant tolerate the DHEA supplements. didn't lose any weight on armour, but didn't gain any either. Since coming off I have gained another half stone, despite dieting. I am hoping KDM can help me with all of this when I go to see him in May.

    thanks for the reply, and glad it has at least helped with the weight issue for you.
  12. Radio

    Radio *****

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    Last edited: Mar 8, 2014
  13. dmholmes

    dmholmes Senior Member

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    xchocoholic likes this.
  14. Ayaju

    Ayaju Senior Member

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    @Lillybelle It's just not true. Most of science hasn't caught up with the science of energy. Structured water is all about changing the energy of water.

    Let's not forget that once upon a time science said that it was impossible for machines (planes) to fly!

    Judy
    xchocoholic likes this.
  15. xchocoholic

    xchocoholic Senior Member

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    If you're avouding gluten, rye and spelt aren't allowed. There's a well known connection for celiac and thyroid problems. I have Hashimoto's BUT my thyroid numbers have never been so far out of range that medication was recommended. It was offeered tho and I tried it, synthroid? And felt horrible.
    Avoiding gluten and goitrogens helps me. Tc .. x
  16. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Maybe the foods contain minerals that help maintain your electrolyte balance and blood volume.
    MeSci and xchocoholic like this.
  17. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Are you sure that your blood sugar is spiking when you consume extra sugar because you are exerting yourself? If you cells are using the sugar, then your blood sugar may not go up.
  18. xchocoholic

    xchocoholic Senior Member

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    It's definitely going up because I feel better immediately. I called it spiking because it's a quick rise but I probably not getting it as high as most diabetics see. My highest when on the mad was 80? and I felt horrible. So it looks like I have to work to keep it up.

    I don't know why but sometimes I can do this several times in a row and sometimes I can't.

    I'm weird. Tc .. x
  19. xchocoholic

    xchocoholic Senior Member

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    Btw. When researching this I saw that Diabetics are told to
    eat something sweet before
    exercising. I just apoarently run out of available glucose quickly and can't generate enough on my own if I'm physically active.

    It's possible my body sends out the wrong msg too since I have OI/pots.
    And that's why actually bringing my glucose level up dorsn't always work after I've used it once.

    I'm sure anyone with hypoglycemia who needs to rause their blood glucose can relate to what I'm saying.
    It helps to have first hand experience in symptoms.

    Tc ... x
  20. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    If it is returning to a (near) normal level after falling, I would call that recovering. ;)

    Have you tried eating sugar or carbs before, and maybe during, periods of exertion? It would probably be better for your body if you could prevent the blood sugar drop in the first place.

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