The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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Recording from 12/13/2017 and 12/14/2017 CFSAC Meeting

Discussion in 'General ME/CFS News' started by Wally, Dec 20, 2017.

  1. Wally

    Wally Senior Member

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  2. Gemini

    Gemini Senior Member

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    @Wally, thanks for posting.

    Is there an index, or can we make one, that links the 11 videos to the agenda items?

    Meeting highlights I'd like to go to directly-- Video # and Time on video:

    Dr. Montoya's Adult Research Update
    Dr. Vallings Pediatric Research Update
    Patient organization presentations:
    1. Simmaron Research
    2. Massachusetts CFIDS/ME
    3. MEACTION
    Public Comments Day 1
    Public Comments Day2
    NIH Update
    FDA Update
    New "CFSAC Treatment/Clinical Trial Working Group"
     
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  3. Wally

    Wally Senior Member

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    @Gemini - I doubt that there is an index that CFSAC has for the recordings, but I like your idea of developing one.

    I am not going to have much time to be on the computer until after the 25th, but I can try to work on this when I have some spare moments next week (unless you or someone else would like to take on this project).

    I really like the idea of PR being a place where patients can come to get info. about what is going on related to this illness and that we help present information in a format that makes access to this information easier to find without require you to jump through a circus tent full of hoops.:eek:

    Happy Holidays - here is too wishing and praying that 2018 will bring all of us much closer to answers and treatments for this illness.
     
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