I think that CFS is a much worse disease than progeria. Although Sam Berns can't lift much weight he doesn't have: difficulty concentrating, chronic pain and crushing fatigue. So he is basically an adult in a kid's body. Kids are generally healthy so there's no comparison.
I had cold skin, muscle pain and headaches in the past. Here is the regimen I used. Stacking drugs is alternating them so you don't overdose. My typical regimen was: ibuprofen (400 mg), 4 hrs later tylenol (500 mg), 4 hrs later ibuprofen, etc. I was allowed to take up to three doses of any drug per day. For the cold skin I would wear long sleeved clothes and take a hot bath daily.
Having CFS forces you to acclimate to a new lifestyle, give up unobtainable goals, and make new ones. Instead of material and career goals I was forced to find other ways valuing my life. Before bed I would make a list of things I appreciated during the day. For example, people that were nice to me or helped me, something that turned out well when it didn't have to, completing exercise goals, being thankful for a caring relative or friend, etc. That way you surround yourself with a positive mental environment and it helps you cope.
Treating depression is very important. When I was depressed I did CBT therapy and used SAM-e. I also found that keeping animal protein portions low (2oz) lessened the intensity of the depression.
I had anxiety as well but since you don't mention having that there's no reason to get into it.
It's natural for sick people to feel bad and not function as well as healthy ones. It is not an easy road to live with disabling CFS. I think if you work on your own situation you can improve your life and learn lessons from the experience. Otherwise it won't end well.
I will reply to everyone's kind replies tomorrow as I am very tired right now and will go to bed.
Just to quickly reply to this one post, I think that progeria sufferers are very bad off themselves and I wouldn't say CFS was necessarily worse. They are not just adult looking in a childs body, they suffer from kidney and liver diseases, arthritis and loss of eyesight and cardiovascular problems as well as brittle bones and a tendancy to dislocate their hips. I believe they live their lives in chronic pain.
I think I did mention I also suffer from anxiety too in the post you quoted. I'm awaiting treatment from services on the NHS here for that, they say you cannot have treatment for both depression and anxiety at the same time as it may be too much so they are going with anxiety to put me forward as my sleeping has been disturbed by that recently.
I'm really tired now, so will continue to reply tomorrow. Hope everyone has a good night or day, depending where in the world you are. x