Invest in ME Conference 12: First Class in Every Way
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reality television show 24 CFS/ME patients move out to desert

Discussion in 'Addressing Biotoxin, Chemical & Food Sensitivities' started by antares4141, Oct 17, 2017.

  1. pibee

    pibee Senior Member

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    cant read all now, but i am willing to move to a desert for this :) so great idea !!


    But I'm not USA citizen so I can be only 90 days, before I need to go to Costa Rica (or wherever?) and re-enter the States again
     
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  2. antares4141

    antares4141 Senior Member

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    Thanks pibee! I know foreigners get green cards for extended stays if they have work don't they? Wonder if the same could be done for health reasons? I would definitely like to have foreigners so that people would see this illness, just like any other is an international problem.
     
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  3. pibee

    pibee Senior Member

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    I am not sure I can get a ' medical' visa, for going to a desert :D

    i actually heard m.visa is harder to get than tourist

    well frankly 90 days of desert should prove something to me, if i dont get better i'll just leave.

    hope you get 25 people or how many you search, would be cool experience
     
    Last edited: Oct 30, 2017
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  4. antares4141

    antares4141 Senior Member

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    Me too! I think environmental exposure (mold chemicals) is a big piece of the cfs puzzle and would like to make it so that this component can no longer be denied by science.
     
  5. SueJohnPat

    SueJohnPat Sue

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    I like the campground idea. I have slept outside 2 nights in a row now .Last night was tough.
    We are moving further away from Philadelphia in 6 days. Wharton State forest is open for camping but there is no one there now and I would be afraid to be in the campground by myself.

    I camp in my Dad,s yard. I think my extended family thinks I am nuts but to my face they are polite anyway.
    I love the idea of a reality show because you have to see this over multiple days to understand this disease.
    This is very isolating.
    My husband is in a severe bout with depression so I feel I can’t leave to go out west for awhile right now. I am trying to convince him to take 3 months off and go with me. The mold affected me and my son and I think it affected him but he does not believe me. He won’t go to any doctor except a psychiatrist and does not believe in alertnative medicine at all but at least he is taking the supplements I am giving him.

    I agree this has got to be studied . My son has Aspergers, my husbands brother is 56 and has dementia. It is very hard to talk to anyone about this without coming across as a conspiracy theorist . Science needs to back this up. I think the approach is to come up with some miracle pharmaceutical ( and make big bucks) to counteract the envioromental pollution instead of admitting it is a problem and having it cost too much money to correct.

    It was really cold out last night by my cfs symptoms really improve greatly if I am outside. Out new home has a shed , I am getting a portable heater and will sleep out there if I have to. Maybe we could form a group and meetup out in the desert for a month or so in the winter. The thought of being on my own away from my family camping is a little daunting. The zoning requirements might make a “ campground “ a little easier.
     
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  6. lnester7

    lnester7 Seven

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    What are you planning for food ( since you need like organic and food/ fresh food to remove any other factor to the equation.
     
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  7. antares4141

    antares4141 Senior Member

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    When I slept outdoors I always went to bed with a hooded sweater so I could keep my head warm. Sorry you have to go through this. It does suck pretty bad. It's a pretty hopeless situation for most of us. That's why I would like to make this thing happen. To bring attention to our plight, with the hope that me might actually get a decent amount of money to put into researching this condition.
     
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  8. E.man

    E.man Senior Member

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    Not going to make for good tv . Bunch of people laying around suffering.
     
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  9. Lipac

    Lipac Senior Member

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    @antares4141
    Just wondering if you've gotten much response?
    Is there medical nearby?
    What's the elevation?
    Great idea, anyway.
     
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  10. pibee

    pibee Senior Member

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    yep, documentary at best.


    @antares4141 , have you tried in mold FB groups?
    25 seems high goal, I think 10 would be good too.
     
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  11. Lipac

    Lipac Senior Member

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    :(...:lol:lol
     
  12. Lipac

    Lipac Senior Member

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    @E.man best laugh I've had this week. No, don't think we'll get rich or famous, except in a " Brown Town" sort of way. I'd be satisfied with quiet and dessert climate and a secure roof and bed.
     
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  13. Lipac

    Lipac Senior Member

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    @Sushi just wondering how you found your living situation? Or are you young and we're already a part of a group that did this together?
    I lived in Portland OR but the shared housing movement there is mostly hipsters, not for over 55 with health challenges. Socialization within that group is pretty mandatory ( potlucks, shared meals more often than not etc)
     
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  14. Lipac

    Lipac Senior Member

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    @antares4141 just for my own curiosity... Do you have CFS??
    That's a whole lotta planning goin on...lol.

    I'm lucky to drive 10 miles into Walmart once a month.
    Or do my hair.
     
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  15. Sushi

    Sushi Moderation Resource Albuquerque

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    I moved to the Southwest for the climate. There were no co-housing communities here at the time but a few years later I heard that one was being developed. I looked at it the next day and decided that it was a good fit. It is--though I do have some communal responsibilities...though I also have a group of great people looking out for each other and helping each other when needed. Also a built in casual social network.

    P.S. writing this post reminded me that it was my turn to take out the trash and recycling bins. But when I went out to do it, someone else had already taken them out. That is typical of the community spirit that I like so much.
     
    Last edited: Jan 17, 2018
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  16. Lipac

    Lipac Senior Member

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    @Sushi :angel: really lovely. Makes me feel good to hear your story.
    It's nice to hear something other than " my great spouse of 30 years who does everything" or thier grown children who do it all and love them in spite of...
     
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  17. antares4141

    antares4141 Senior Member

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    Still looking for people who have legal expertise, knowledge of do's and don'ts as far as rental housing, code enforcement issues. legal advise on how to protect myself from liability if something goes horribly wrong, advise on how I would get insurance to cover myself in such a unusual situation, video documentary expertise, and knowledge on how to conduct a study and document findings, acquiring volunteer air quality experts to evaluate the homes of the test subjects before they leave, setting up a non-profit charity, etc. I'm thinking of scaling it down a little bit by putting a building on my homesite which would drastically bring down the cost but raise some other issues as far as separating me personally from the non-profit status which is what I would want.

    Some of the infrastructure is already there. Water, electric. A smaller building, maybe 40x40 with the lean 2's on each side for kitchen and bathroom. I could squeeze in 8 16x8 units.

    I have a contractor who is interested in doing the job and is going to give me a price on the basic 40x40 building.

    Being I plan to put it on my existing homesite if the plan fails for any reason I still have a building I can use and don't have to worry about having a much larger one that is sitting empty I would be having to pay taxes on and maintain.

    At this point I am still trying to get the funds which will be far less for the scaled down version of my plan.

    If it turns out to be successful in that the subjects improve markedly and I have a market for the idea, than I would consider scaling up to the original plan. In addition to maintaining the scaled down version.

    Closest hospital is 14 miles away. Elevation is almost 4800'
    Thanks for the encouragement!
     
    PatJ likes this.
  18. antares4141

    antares4141 Senior Member

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    I have not. Haven't even visited the mold FB groups. There will be one issue with my homesite. I have amongst other things like a travel trailer, an old Mobile home on the site I had hoped to remediate at some point. It's sitting underneath a carport. Plus a 30x30' garage. Probably going to be a deal breaker for extreme avoiders.

    I'm looking more towards those that would be more oriented towards controlling their housing situation. Or in other words the units would be built in such a way there wouldn't be any question of weather there was hidden mold.

    I still think this is safe from the standpoint of exposure to mold.
    It's more realistic from the standpoint of cost, but many would disagree with this and it's going to be a deal breaker for them.

    But I plan on looking into the FB group anyways and thanks for the suggestion.
     
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  19. antares4141

    antares4141 Senior Member

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    Idea is to get the word out, it would be nice if I could make it entertaining. I think somebody who is creative and has experience with television and resources might be able to do this. Certainly not me I have no talent in this regard.
     
  20. Lipac

    Lipac Senior Member

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    @antares4141
    A few more thoughts:
    The elevation would be a problem for many unless they already live that high. There are some threads about people needing days to just get over the Rockies.

    Also, regarding video documenting- unless people are young and naturally very attractive, a good number of us women can't do our hair, sometimes don't even brush our teeth. Not sure we would want to look like crap on a video!

    You might do better with an all male colony for several practical reasons- frail women have safety concerns living with strange men, and not many over 50 would want to be in such an isolated setting I don't think.
    (I would live with a group of retired nuns , no problem.
    I don't think I'd feel the same about a mixed group I don't know out in the desert.)
    Don't think thier families or children would be in favor of it.

    It seems ideal for men though.
    Men don't do well living alone as they age anyway- stop socializing, poor nutrition, do too many dangerous things alone because they don't ask for help, etc.

    Women tend to seek help more, and eat better than men.
     
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