Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
Discuss the article on the Forums.

Re-analysis of PACE trial as evidence based medicine tool?

Discussion in 'Other Health News and Research' started by Janice Hargreaves, Nov 10, 2016.

  1. Janice Hargreaves

    Janice Hargreaves

    Messages:
    67
    Likes:
    212
    UK
    I feel that the re-analysis of the PACE trial by so many well placed experts is clear evidence that the BPS model is incorrect.
    How can we use it as a tool which benefits our cause?
    How can we use that to prevent the NHS, NICE and MRC pouring any more money into investigating any benefits of CBT and/or GET in adults or children with ME/CFS?
    In other words get those in BPS school out of research into ME/CFS.

    I understand that until there is a biomarker or chemical signature for ME/CFS this is difficult.

    The ME Association has launched an Xmas appeal to raise funds to find out if the Naviaux and Hanson et al metabolomics study can be replicated in the UK using the ME/CFSBIobank samples.
    See http://www.meassociation.org.uk/201...hristmas-appeal-starts-today-9-november-2016/ for appeal for any support anyone can give.

    How can we focus?
     
    Invisible Woman and Woolie like this.
  2. trishrhymes

    trishrhymes Senior Member

    Messages:
    2,154
    Likes:
    17,880
    @Tom Kindlon has said on Twitter yesterday that there is a peer reviewed re-analysis of the PACE data in the pipeline and that he can't discuss it further as it's embargoed until publication. I gather this may take a month or more. We obviously need to respect this and not ask for more details or speculate about it.

    I think once that's out in the open we will have stronger ammunition for both the media and NICE etc.
     
    Last edited: Nov 10, 2016
  3. Janice Hargreaves

    Janice Hargreaves

    Messages:
    67
    Likes:
    212
    UK
    That is such a relief to hear. Thank you for letting me know.:)
    Hopefully the MEA Xmas fundraising for metabolomics will go well and so another lovely positive for everyone to enjoy.:thumbsup:
     
  4. Tom Kindlon

    Tom Kindlon Senior Member

    Messages:
    1,399
    Likes:
    8,296
    Here are the tweets with the exact wording:






    I will of course mention the other authors when it gets published especially as I'm not the lead or corresponding author i.e. somebody else did the biggest share of the work.
     
  5. trishrhymes

    trishrhymes Senior Member

    Messages:
    2,154
    Likes:
    17,880
    Thanks Tom, I haven't yet learned how to post tweets directly in here. Better to see the real thing! Well done to you and your co-authors. Can't wait!
    :)
     
  6. AndyPR

    AndyPR Senior Member

    To post tweets. From a tweet you want to post, click on the 'three dots' button. This should give you a menu like this
    Screen shot 2016-11-11 at 09.06.53.png
    Select 'Copy link to Tweet' which should then give you this
    Screen shot 2016-11-11 at 09.07.16.png
    Copy the link and simply paste the link into a post here, the forum software will then do the rest.
     
  7. trishrhymes

    trishrhymes Senior Member

    Messages:
    2,154
    Likes:
    17,880
    Thanks Andy, I'll try to remember!
     
    Tom Kindlon and AndyPR like this.
  8. Daisymay

    Daisymay Senior Member

    Messages:
    739
    Likes:
    4,026
    Brilliant! I look forward to reading it. I hope it's out before Christmas, that would be some present for the ME community.

    Hmmm.......it will be interesting to see how the authors, Lancet and SMC react.

    If there is a peer reviewed critique of a paper that must surely put real pressure on the journal publishing the original paper to take action? Is there a set protocol for such things?

    Or do journals just tend to dismiss such critiques and carry on as usual? I wouldn't be surprised.....
     

See more popular forum discussions.

Share This Page