Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
Discuss the article on the Forums.

Questions for Cholestyramine users

Discussion in 'Addressing Biotoxin, Chemical & Food Sensitivities' started by ebethc, Jul 2, 2015.

  1. ebethc

    ebethc Senior Member

    Messages:
    1,206
    Likes:
    785
    If you've tried cholestyramine AND it worked for you:

    1. How long did it take for you to notice a POSITIVE difference?

    2. How many weeks or months did you use it?

    3. How frequently do you go back for another round (if at all)?


    thanks.
     
  2. *GG*

    *GG* Senior Member

    Messages:
    6,139
    Likes:
    4,734
    Concord, NH
    Been on it for years!

    GG
     
  3. ebethc

    ebethc Senior Member

    Messages:
    1,206
    Likes:
    785
    so, you're continually on it? ie. you take it every day?
    how long did it take to work?
     
  4. *GG*

    *GG* Senior Member

    Messages:
    6,139
    Likes:
    4,734
    Concord, NH
    Yes, continually on it. My Dr does the VCS test and I am supposedly still toxic, Dr Shoemaker was also big on CSM and Visual Contrast test?

    I had high levels of mercury aroun 2009, had it retested about 1 year later. Levels came back much lower. So it could depend upon what you are trying to detox?

    GG
     
    ebethc likes this.
  5. fromstrawtomore

    fromstrawtomore

    Messages:
    10
    Likes:
    20
    Brisbane, Australia
    1. How long did it take for you to notice a POSITIVE difference?

    It took two months of TID-QID dosing (4g CSM) to pass the VCS test.

    2. How many weeks or months did you use it?

    Seven months. Still on it. I changed from compounded to normal (with aspartame) after four months due to cost.

    3. How frequently do you go back for another round (if at all)?

    I go back and forth passing the VCS so I'm continuing full dose. For most long term ME/CFS I would imagine six to twelve months, but sometimes longer, would be expected.
     
    Gingergrrl and Sushi like this.
  6. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    9,394
    Likes:
    24,249
    USA
    Am bumping this back to top as I am also interested in hearing more reports on CSM.
     
  7. student

    student Senior Member

    Messages:
    164
    Likes:
    53
    Choly beginner. I am the greenhorn.
    I had used Chlorella binders (Klinghardt. daily 80 small) before this. But I dought that they brought mold out.
    1. Can not tell. – It is my 7th day using 4x dayly 4 g Choly. Iam still brushing my mouth 2x daily, with 1/ 10 of the package. Bevore taking Choly 30min befor the meals. I take poop softeners now in order to not constipate in this first week. (I have gained much benefit from other things: Resistant starch. I was 6 weeks away – from the mold house. I am slowly making progress - with lowering mold load. Room by room. I started myrrhe nasal - plus I block my nose of the whole day.- These things changed a lot for a start.)
    2. this first week - only. And I see my doctor to get perscription for the next 20 days.
    3. Plans are to use it 3- 4 weeks every 3 mounth now.
    My choly. start was – on a 3 days trip to a (semi) safe place. I read Lisas start-up story to prepare my Choly use. First 5 times – I was very cautios. So I used up to 2 g – to get my throught clean (up to 40% material every time). Brushing thees with Choly. Gurgel with Choly-water – like what I did with the „oil drawing“. Also in the head down positions. Yes I had some of the strong mouth reaktions- and I spitted out quite a bit. I felt that slowly I will get used to this material. Than I felt more safe to swallow – and there was no vomiting. I used Oil. I had not eaten (on fasting) and drank a lot of (3 L) water. It was stressfull. But this way everything went well. Appart from constipation for 3 days. I went out, was aktive and did my daily duties. I would do it again.

    regards student

    update. Yes on day 8: My tomie is swolen. Some poo came out. But I do not feel well and little unsafe. So this time I pause with the Cholestyramine.
     
    Last edited: Oct 9, 2015
  8. Forebearance

    Forebearance Senior Member

    Messages:
    561
    Likes:
    350
    Great Plains, US
    Be sure to eat a lot of healthy, natural fats, student. That will help replace the fats that cholestyramine carries out, and will help with constipation.
     
  9. *GG*

    *GG* Senior Member

    Messages:
    6,139
    Likes:
    4,734
    Concord, NH
    Hmm, wish I had issues with constipation.

    GG
     
  10. Dufresne

    Dufresne almost there...

    Messages:
    873
    Likes:
    1,125
    Montreal
    Yup, I find it almost impossible to keep weight on when I'm binding.
     
    keenly likes this.
  11. student

    student Senior Member

    Messages:
    164
    Likes:
    53
    The first day &night - I feel little better. I could eaven go out to a group meating for this evening.
    So I will pause and trie to get much Cholyst. out of the system.
    Yes, the direction with oil and fat helped me. Thanks.
     
    Last edited: Oct 10, 2015
    Forebearance likes this.
  12. xrayspex

    xrayspex Senior Member

    Messages:
    973
    Likes:
    242
    u.s.a.
    hey does anyone know of a place to get cholestryamine without a prescription? I would like to try it--a friend gave me some but it has aspartame and that stuff gives me bad side effects so can t use it . Aspartame will cause headaches rashes depression --back when I drank the new diet pepsi around 1983-before had cfs when diet soda changed to it in early 80s--I noticed that. Was one of first obvious MCS experiences.--anyway, sad they had to a lot of cholestyramine with nutrasweet--can ya get it without that?
     
  13. ebethc

    ebethc Senior Member

    Messages:
    1,206
    Likes:
    785
    no idea where to get cholestyramine w/o a rx, BUT there are some natural alternatives... Chlorella or plant sterols are the ones I've heard of ... plant sterols didn't agree w me.. sorry, can't remember why...Here's one product

    https://www.amazon.com/Pure-Encapsulations-CholestePure-Supplement-Metabolism/dp/B0015VJC34?th=1
     
    xrayspex likes this.
  14. Jesse2233

    Jesse2233 Senior Member

    Messages:
    1,598
    Likes:
    3,972
    Southern California
    Has anyone seen significant, sustained improvement from cholestyramine?

    I know it's central to the Shoemaker protocol, and, though I'd like to, I haven't been able to find any glowing reviews
     
    ebethc likes this.

See more popular forum discussions.

Share This Page