Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Questions Answered by Dr. Naviaux

Discussion in 'General ME/CFS News' started by RL_sparky, Sep 13, 2017.

  1. junkcrap50

    junkcrap50 Senior Member

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    No, I don't have a reference on it. Just thought I remembered reading that, but I could be wrong. And of course, I was not implying it was safe for seld-experimentation.
     
    PinkPanda likes this.
  2. Daniel Tobin

    Daniel Tobin

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    Have you used the suramin yet? I am very keen to do so but it's difficult to figure out how to go about it. I'm unsure as to how I approach issues such as dosage preparing the medicine, administering it etc. Have you looked into how you might organise that?
     
  3. Sushi

    Sushi Moderation Resource Albuquerque

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    Have you noted that Dr. Ron Davis reported that the sources of Suramin available (other than from Bayer) may be contaminated and that this could have affected the results of some trials?
    You should have PM available now.
     
    Countrygirl likes this.
  4. ash0787

    ash0787 Senior Member

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  5. Jesse2233

    Jesse2233 Senior Member

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    If that’s true, then perhaps Dr Wantanabe might be interested in a trial
     
  6. hixxy

    hixxy Senior Member

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    That seems like it wouldn't be possible because of patents.
     
    Last edited: Dec 1, 2017
  7. Daniel Tobin

    Daniel Tobin

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    I believe the patent is expired on suramin so companies or labs are able to produce it.
     
    pattismith likes this.
  8. hixxy

    hixxy Senior Member

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    He was making a statement in general about all drugs.
     
  9. knackers323

    knackers323 Senior Member

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    hi @Learner1 have you had much success with ivig?
     
  10. Learner1

    Learner1 Forum Support Assistant

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    Yes, my symptoms are much better than when I started. If I delay an infusion, I seem to get sicker. But, in general, my life is better.
     
    Sushi likes this.

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