Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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question for those tested positive for xmrv and those who are sun sensitive

Discussion in 'General ME/CFS Discussion' started by xrayspex, Oct 2, 2017.

  1. xrayspex

    xrayspex Senior Member

    I cannot tolerate sun/heat for long. I have Sjogrens, suspected Lupus. only 1/3 of Lupus are sun sensitive. I don't get malar rash but brain fog and joint pain etc

    I did bunch of research on mechanisms behind why that happens and one thing that came up is a problem with
    metalloprotease and they suggest inhibitors of that like doxy. Interestingly that can also be a cause of gum perio problems and I have both joint pain and gum probs.

    I did a search of metalloprotease on here and interestingly only thing came up were 2 papers,one on xmrv and the other on mulv. I am wondering if maybe some auto-immune and some retro virus stuff could be related, yea yea I know, xmrv not around anymore but the one paper on mulv is from '76

    oh PS so I tested positive for xmrv.....just curious if some others who also did are sun sensitive? if there could be some connection.

    or if you are sun sensitive and get in flares from it I am also interested have you found an antidote :)
    1. [​IMG]
      Proteins of the XMRV retrovirus Christopher Carter
      ...factor FOXO6 (Table 8) , pleckstrin 3 (Table 9) the metalloprotease ADAMTS9 and ubiquilin 3 (Table 10). Discussion. The XMRV virus expresses...
      Post by: VillageLife, Jul 17, 2010 in forum: XMRV Research and Replication Studies
    2. MuLV found inserted into MITOCHONDRIAL DNA[/paste:font]
      ...Abstract Top Abstract Introduction The mitochondrial metalloprotease AFG3L2 assembles with the homologous protein paraplegin to form a...
      Post by: XMRV Research and Replication Studies
    Last edited: Oct 2, 2017
    zenzen likes this.
  2. ahmo

    ahmo Senior Member

    Northcoast NSW, Australia
    @xrayspex From the moment I collapsed w/ ME I could not tolerate sun. horrible. Years passed before I discovered pyroluria, and among the many symptoms I had, sun sensitivity was one. Within 5 days of starting the supplements, I no longer was intolerant to sun. Amazing. Here's a questionnaire for pyroluria. And Dietrich Klinghardt's protocol. I never did lab testing, just took the questionnaire twice, to answer yes to things that were in my past, but not current. My score was high enuf for me to order supps. The rest is history. good luck. questionnaire

    Klinghardt: Autism, Lyme, Pyroluria youtube

    Short Version (36pg) Pyroluria/Lyme protocol. From Powerpoint doc used during Klinghardt presentation: Lyme Induced Autism
    zenzen and xrayspex like this.

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