Discussion in 'General ME/CFS News' started by Firestormm, May 16, 2014.
LoL - me too, Go Griffith !! Sounds great.
Griffith is one of my two universities, though I was at Nathan campus. I really hope they get somewhere. A simple blood test would be ideal as a diagnostic, prognostic or treatment marker.
That's a very good video. It portrays ME patients very respectfully.
There's also a radio interview with Professor Sonya Marshall-Gradisnik:
Professor Sonya Marshall-Gradisnik, Australia's foremost expert on chronic fatigue syndrome
16 May 2014
AMAZING radio interview to Prof. Sonya Marshall-Gradisnik!!!
The radio host did a great job, the only black spot is when she mentions 'lack of motivation' in the list of symptoms
The Griffith University research team are going to help solve the "mystery" of our illness, but as Prof. Marshall-Gradisnik says Stanford and other teams around the world are converging and doing the much needed biomedical research.
Thank you @Bob and @Firestormm for posting this seminal updates!
I read the above but haven't watched the video. I just want to say that 'lack of motivation' is absolutely one of my symptoms. I never seem to think "Oh, if only I had the energy, I would do xyz." There is no xyz.
Hi, all. That's a great video excerpt, Firestormm, very respectful and hopeful. It was shocking to see how badly Amity Slockee's mobility is affected, and I really hope the results from Professor Sonya Marshall-Gradisnik's study will be released soon. Another relevant issue that is heightened by the video is the cost of current treatment, as indicated by the other CFS patient's box of medications.
Probably one of the better videos and good that immunological side of it was mentioned.
good they didn't show someone asleep in bed like many do.
I recognized some of those meds. Its also the case that most of what we are taking is not subsidized by insurance or otherwise, and we pay full cost, which in Australia can be up to 5 x what is paid in the US. There is a reason many of us order from overseas.
You can also try a Google Site Search
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