The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
Discuss the article on the Forums.

Queen Mary Student Union - The Print

Discussion in 'General ME/CFS News' started by Yogi, Apr 6, 2016.

  1. Yogi

    Yogi Senior Member

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    Great news ... the truth about PACE trial coming out on QMUL campus

    The Print News is Queen Mary Student Union's newspaper. This is the main university of the PACE trial and Peter White.

    Rachel Muller-Heyndyk has written about it in January. She is a second year English and Drama student at QMUL.

    I understand this was printed and available and distributed on campus.

    Let's give Rachel Muller-Heyndyk some hits on the QM student website.
     
    Webdog, Valentijn, Justin30 and 19 others like this.
  2. Yogi

    Yogi Senior Member

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  3. John Mac

    John Mac Senior Member

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    Liverpool UK
    There is a comments box to leave replies further down the page.
     
    Esther12 and jimells like this.
  4. harveythecat

    harveythecat

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    Hi - yes we did indeed. Me and a current student, also with ME, were going to write something, then we both were too ill to do it on top of other things. I still think galvanising students at these unis and getting stuff written in the student press is a good idea. It's something I might be able to do if I have the time/energy (of course!)
     
    sue la-la, Yogi, Roy S and 5 others like this.
  5. Esther12

    Esther12 Senior Member

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    LOL - that is a bit of a problem with our patient advocacy.

    Luckily people are able to do bits and pieces, and it can all add up.

    This piece doesn't get all the details right, but it seems that it's hard for people to do so without putting in years of research, eg:

    Also, they only mentioned four of the researchers who put their name to the letter... maybe to save space?

    Still great to see this in there though. I just always focus on the niggles.
     
    Yogi, Bob and harveythecat like this.
  6. Esther12

    Esther12 Senior Member

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    PS: How did no-one notice this til now?!
     
    BurnA likes this.
  7. harveythecat

    harveythecat

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    Manchester, UK
    Also - it doesn't just have to be students/ex students. anyone could email in to student newspapers with a story - the student reporters would probably find it really exciting.
     
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  8. Battery Muncher

    Battery Muncher Senior Member

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    Unfortunately, I think this semester is over in the UK (with the exception of Cambridge and Oxford?).

    Crucially, exams are coming up, so I doubt anyone will pay much attention right now.

    Having said that, I think a coordinated campaign to appeal to the student unions of QMUL, Oxford, Edinburgh etc etc. would be very worthwhile. Something to plan for September? Or does anyone think we would get any response now and during the summer?
     
    Esther12 likes this.
  9. harveythecat

    harveythecat

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    i know at oxford the term doesn't finish until mid june and not everyone has exams every year.
     
    Battery Muncher likes this.
  10. Mark

    Mark Former CEO

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    Sofa, UK
    I hesitate to comment, in case my words are used in a few years time to undermine another vexatious campaign by nasty patient activists (as with my comment about FOI requests, which I now very much regret of course), but I think the concepts above are an extremely good idea and a worthwhile focus for campaigning. In my experience, students in general tend to be much more open-minded than older professionals, whose prejudices on the subject may tend to be rather more fixed and whose past 'education' on the subject (in the unlikely event that they got any at all) will have been almost completely misleading. If we're looking to the future, then getting the word out to students about the obscured truths about ME/CFS could really bear fruit further down the line.

    I don't believe that our members, or the wider community, need any reminders on this - you get it, I know - but for the benefit of outside audiences I'll emphasise that all such campaigning must be peaceful, polite, respectful, and well within both the law and the regulations of universities (regulations which exist to protect their students); any other approach could be profoundly counter-productive. I'm not sure what the best "way in" might be, but I think it's well worth some serious thought.
     
    Yogi, sue la-la, Valentijn and 4 others like this.

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