Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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"QMUL v the Information Commissioner and Matthees: Tribunal hearing and Open Justice – Part 1"

Discussion in 'General ME/CFS News' started by Dolphin, Apr 29, 2016.

  1. Dolphin

    Dolphin Senior Member

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    Continues at:
    https://valerieeliotsmith.com/2016/...d-matthees-tribunal-hearing-and-open-justice/
     
  2. Dolphin

    Dolphin Senior Member

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  3. TiredSam

    TiredSam The wise nematode hibernates

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    Germany
  4. BurnA

    BurnA Senior Member

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    Yes - covered all angles by the looks of it.
     
    Bob, Daisymay, Dolphin and 1 other person like this.
  5. Scarecrow

    Scarecrow Revolting Peasant

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    Scotland
    And surprisingly accessible considering the detail.
     
    sue la-la, A.B., Bob and 4 others like this.
  6. adreno

    adreno PR activist

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    Wow, fantastic job by Matthees.
     
    sue la-la, A.B., Dolphin and 3 others like this.
  7. skipskip30

    skipskip30 Senior Member

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    How long is it likely to be until we get a verdict?
     
  8. Esther12

    Esther12 Senior Member

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    I don't know. I think Valerie said it could be four weeks. Arrrghghgh!!
     
    Valentijn likes this.
  9. Skippa

    Skippa Anti-BS

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    @charles shepherd said they *aim* to get a response out within 2 weeks...

    Probably not a good time to announce they have put Sir John Chilcott in charge of it... (UK joke)
     
  10. Snowdrop

    Snowdrop Rebel without a biscuit

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    Still no word on the outcome?
    Is there no way to find out what the delay is all about?
     
    Skippa, ballard, John Mac and 4 others like this.
  11. Dolphin

    Dolphin Senior Member

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    I have just finished reading this.
    It is a very, very impressive document.

    The PACE trial investigators' calls to not release the data look very weak. And reading between the lines you might end up thinking that they were trying to hide the data.

    Alem Matthees mentions that he is a patient himself. :jaw-drop: This means he must have had to make huge sacrifices to create it, for which I am very grateful. :thumbsup:
     
    Simon, moosie, Bob and 13 others like this.
  12. Kati

    Kati Patient in training

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    I wonder what is the delay in announcing the decision. It is many weeks overdue now.

    @charles shepherd any idea about what's going on there?
     
    Last edited: Aug 14, 2016
    Bob, Esther12, ScottTriGuy and 5 others like this.

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