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Publish the FDA/NIH Papers: Email President Obama's Science Advisor, John Holdren

Discussion in 'Action Alerts and Advocacy' started by Navid, Jul 6, 2010.

  1. Navid

    Navid Senior Member

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    at

    AskDrH@ostp.gov

    i just emailed:

    when will the FDA/NIH papers that correlate XMRV to CFID's be published?


    (thanks to MeZombie for email address)
     
  2. V99

    V99

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    So did I, thanks guys.
     
  3. Frickly

    Frickly Senior Member

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    Just sent my email.
    Thanks,
     
  4. LaurelW

    LaurelW Senior Member

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    Me too! Thanks so much for the heads up.
     
  5. boomer

    boomer Senior Member

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  6. I've emailed the Globe and Mail, and every CBC station in the country.
     
  7. boomer

    boomer Senior Member

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    And here is the page to leave a message to Dalton McGuinty Premier of Ontario. Correct me if I am wrong but wasn't he the Premier of the first and only Province that has classified cfs as a neurological disease, meaning it is a recognized disease at least. I thanked him and encouraged him to take leadership in research and funding for centers of excellence.

    https://www.premier.gov.on.ca/feedback/feedback.asp?Lang=EN
     
  8. glenp

    glenp "and this too shall pass"

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    Vancouver Canada suburbs
  9. muffin

    muffin Senior Member

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    Emailed Washington Post, Sebelius (DHHS), Frieden (CDC) and AskDrH@ostp.gov

    I think it is time for ALL OF US to email Dr. Thomas R. Frieden, Director of the CDC ( ftdh@cdc.gov ), and insist/DEMAND that HE be the one to finally clean up and deal with the CDC/CFS program once and for all.
    Frieden needs to be made very aware of what is going on and that millions are aware and advocacy action will be taken -- and the CDC will finally be brought down.
     
  10. Cloud

    Cloud Guest

    I've sent several emails today too.
     
  11. Email the politicians and bureaucrats who can affect policy change, not the research-scientists. It's decision makers and policy makers we need to reach.
     
  12. Dr. Yes

    Dr. Yes Shame on You

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    And don't forget to contact journalists, as politicians need their arms twisted to change policy, especially if someone is already twisting their arms in the opposite direction.
     
  13. muffin

    muffin Senior Member

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    Agree with BRC and DRyes. Don't bother with the researchers as they don't care what you/we all think. They just delete the emails anyway. And what would you say to them anyway? You people are idiots and didn't do a responsible study on XMRV? They know that already.

    Hit the journalists, Congress/Parliament and others who can affect change and take action. I wouldn't email Reeves for any reason. Why? I think he knows how much the CFIDS community is furious at him and he is well aware he was removed from the CDC/CFS program prob. because of this pressure. I do want him prosecuted but that waits unitl the research and funding are upped hugely.
     

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