The Power and Pitfalls of Omics: George Davey Smith’s storming talk at ME/CFS conference
Read about the talk that stole the show at a recent ME/CFS conference in Simon McGrath's two-part blog.
Discuss the article on the Forums.

Psychology Today: 'CF patients, more research backing you'

Discussion in 'General ME/CFS News' started by Countrygirl, Nov 11, 2017.

  1. Countrygirl

    Countrygirl Senior Member

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    https://www.psychologytoday.com/blo...ic-fatigue-patients-more-research-backing-you


    Terrible name; but some improved content.

    The message is finally getting out there.........with all its faults


     
    SueJohnPat, Dolphin, Mary and 9 others like this.
  2. lnester7

    lnester7 Seven

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    I asked them to fix the tittle. Paper was on CFS not CF.
     
  3. Forbin

    Forbin Senior Member

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    Good article, but it concludes with an "88% recovered after 12 years" stat for "young people" with no mention of the recovery rate for adults, leading one to infer that the recovery rate in adults is probably similar.
     
  4. Mary

    Mary Senior Member

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    This is great to hear @Countrygirl! So the paper you linked yesterday re the Georgetown Study is having an effect already. I hope it's a snowball that continues to grow as it plummets down a steep slippery slope obliterating misinformation and fraud in its wake! :woot: (I'm a bit sleep-deprived at the moment, I hope the metaphor works, am not quite sure! :confused:;))
     
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  5. RogerBlack

    RogerBlack Senior Member

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    And implying that it is recovery to normal definitions of recovery, not a temporary moderate functioning with limits that later declines.
     
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  6. HowToEscape?

    HowToEscape? Senior Member

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    Psychology Today is sort of like time magazine, but with even more BS. The one thing I found it’s good for is as a filter; anything promoted by ‘psychology today’ is something you should be on guard against.
    The one headline of theirs I remember is “Not happy? Try money“. What a profound insight that no one has ever thought of in the entire history of humanity! Of course it turns out that the very rich are often very miserable, but the truth of a statement doesn’t matter to a publication like PT.
     
  7. SueJohnPat

    SueJohnPat Sue

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    I was a subject in this study. I am glad to know that more evidence is piling up. I was pretty sick at the time I rode the train down to Washington from Philadelphia by myself. I stayed in the hospital. I told them I was afraid I could not get from the hotel to the hospital for the study the day after an exercise test. I asked for a wherlchair to go to the functional MRI.

    I stressed to the doctors how hard it was for me to go down there by myself. I felt that even those excellent Dr.s at Georgetown were incredulous that I could have so much trouble traveling by myself and that I was scared of collapsing.

    The doctors told me they were convinced this was absolutely a physical illness but that there was huge political pressure for it to be “ psychological “ . The Dr at Georgetown totally validated that this was a physical illness.
     
    CFS_for_19_years and Joh like this.
  8. Alvin2

    Alvin2 If humans were rational...

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    Haven't read the link but i would like an apology for the people harmed by psycology's lies and a commitment to weed out the people still using those lies to harm patients.
    Oh and a refund for the money the CBT camp has thrown away chasing those lies.

    And yes i know all this will happen when pigs fly.
     
    Orla and SueJohnPat like this.

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