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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Provision of social support to individuals with chronic fatigue syndrome

Discussion in 'Latest ME/CFS Research' started by shrewsbury, Nov 11, 2009.

  1. shrewsbury

    shrewsbury member

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    From co-cure again.

    Now that's what I call good science. Give people who are too sick to take care of all of their necessary daily activites some help and see if they feel less tired and more energetic as compared to controls who received no help!

    Does anyone know who Jason is? I'm too tired to research now. What else has he done?

    islandfinn:)


    Provision of social support to individuals with chronic fatigue syndrome.

    Journal: J Clin Psychol. 2009 Nov 9. [Epub ahead of print]

    Authors: Jason LA, Roesner N, Porter N, Parenti B, Mortensen J, Till L.

    Affiliation: DePaul University.

    NLM Citation: PMID: 19902489


    The present study evaluated a buddy program designed to provide
    support for individuals with chronic fatigue syndr
    ome (CFS).

    The intervention involved weekly visits by a student
    paraprofessional, who helped out with tasks that needed to be done in
    an effort to reduce some of the taxing demands and responsibilities
    that participants regularly encountered. This model of rehabilitation
    focused on avoiding overexertion in persons with CFS, aiming to avoid
    setbacks and relapses while increasing their tolerance for activity.

    Participants with CFS were randomly assigned to either a 4-month
    buddy intervention or a control condition. Posttest results showed
    that individuals who received a student buddy intervention had
    significantly greater reductions in fatigue severity and increases in
    vitality than individuals in the control condition
    . There were no
    significant changes between groups for physical functioning and stress.

    Buddy interventions that help patients with CFS reduce overexertion
    and possibly remain within their energy envelopes can be thought of
    as representing a different paradigm than nonpharmacologic
    interventions that focus only on increasing levels of activity
    through graded exercise.



    (c) 2009 Wiley Periodicals, Inc. J Clin Psychol 66:1-10, 2010.
  2. busybee

    busybee Senior Member

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  3. Hysterical Woman

    Hysterical Woman Senior Member

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    Leonard Jason

    Hi if,

    Isn't that Leonard Jason who is on the CFSAC? Even tho he is a psychologist, he seems to have understood early on that we are not all just crazy....OK...well.....I'm not....not sure about you :)

    Take care,

    Maxine
  4. shrewsbury

    shrewsbury member

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    Thanks busybee. Those are the perfect starting points. He's one of the members of the CFSAC that I couldn't catch the name of. Will try to look into his research further later. He sounds so sane.

    Meantime I dream of us all having homecare provided!:):):):):):)

    if:)

    ETA

    Me Maxine? - yes I'm all crazy, and have a black sense of humour on top of it all - awhooooooooooooooo

    but you, you're hysterrrrrrrrrrrrrrrricaaaaaaaaaaaaaaaalllllllllllllllllllll:eek::eek::D:D:D:p
  5. Hysterical Woman

    Hysterical Woman Senior Member

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    islandfinn

    Hi if,

    I dream of that too. Wouldn't that be amazing if we could get homecare?

    You may b all crazy, but you have been paying attention and have a good memory. I guess I will now just be referred to as that hysterical woman on the forum. Hmmmm....wonder if I should change my screen name. :)

    Maxine
  6. shrewsbury

    shrewsbury member

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    oops - did I mention that I'm an unintentional trouble-maker as well?:(:(:eek::eek:
    ah well - now you know.

    You do know that I mean very funny, and not emotionally overwrought, don't you?

    Will forthwith stop all references to hysteria, and assume all other caring members will as well, at least most of the time.

    if:)
  7. Hysterical Woman

    Hysterical Woman Senior Member

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    Hysterical woman

    Dear Unintentional Trouble Maker,

    Oh, good grief, yes, I know that you mean very funny - I am the one who started the whole hysterical woman thing. And I am somewhat serious about changing my screen name to hysterical woman as a tongue-in-cheek statement. However, I am afraid that it might offend some members (especially some new ones) so will probably not do it.

    :p

    Maxine
  8. Dolphin

    Dolphin Senior Member

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    Prof. Jason's interest in ME/CFS started from being a patient himself. IMHO, very often the best people in the field are coming from this perspective (people who live with somebody with the illness often can be very good also).
  9. Hysterical Woman

    Hysterical Woman Senior Member

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    Wow Tom, thanks. I wasn't aware that Prof. Jason had personal experience with ME/CFS. And I also believe that the best people to speak for us have seen the devastation of this illness up close.

    Maxine

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