Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Proper testing for Lyme with medicare

Discussion in 'Lyme Disease and Co-Infections' started by sk123, Nov 8, 2017.

  1. sk123

    sk123

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    Hi All
    Can anyone suggest which is the proper test to begin to rule out Lyme disease if one has medicare? The primary MD just wrote Lyme confirmatory test with cpt code 86617 with Labcorp. Is this enough? I keep reading that ELISA should be done with the western Blot. Which test number is this please? I was looking a Labcorp test menu and it just has Lyme disease IGM ..is this the Elisa test? Also there is a note at bottom of the western blot test sample that says:
    "Sera from individuals with the following may cross react in the Lyme Western Blot assays: other spirochetal diseases (periodontal disease, leptospirosis, relapsing fever, yaws, and pinta); connective autoimmune (Rheumatoid Arthritis and Systemic Lupus Erythematosus and also individuals with Antinuclear Antibody); other infections (Rocky Mountain Spotted Fever; Epsteināˆ’Barr Virus, and Cytomegalovirus)."

    Now my family member that I am trying to get this test for does have high EBV (>600) and Cytomeglovirus (10) IGG titers. So in this scenario, would it be advisable to do the western blot?
    Any guidance is appreciated very much!
     
  2. Thinktank

    Thinktank Senior Member

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    It's better to do both. C6 ELISA IgM / IgG and the western blot.

    These tests are still insufficient and often give a false negative result but there's nothing better on offer yet.
    Tests like the LTT / Elispot from arminlabs and others are very unreliable giving too many false positives.

    If the tests are negative and if an infectious disease specialist with vast knowledge of lyme disease (hard to find) has ruled out lyme disease by clinical investigation then in my opinion it's not worthwile to pursue it any further, don't fall into the "chronic lyme disease" trap unless it's clearly proven by investigation.
     
    Last edited: Nov 9, 2017
    mattie likes this.
  3. Markus83

    Markus83

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    Do you have data to back up this claim?
     
  4. sk123

    sk123

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    So the MD only wrote a test for Western Blot only and it only showed that band 41 was positive. Can this be a definitive negative for Lyme? Supposedly 2 of the bands have to be positive to equate to a positive test?
    Can anyone shed any light on this?
     
  5. Learner1

    Learner1 Professional Patient

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  6. sk123

    sk123

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  7. Ema

    Ema Senior Member

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    The result is only as good as the testing procedure. I

    f you are considering being treated for Lyme, with antibiotics, often for years, I would consider pursuing a test from one of the specialty labs.
     
  8. Dufresne

    Dufresne almost there...

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    Dr Horowitz treats if it clinically looks like Lyme and one of Igenix's bands comes up.
     
    Mel9 likes this.

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