Hi Samuel, Have you looked around at sites for other diseases and found ones that you like? Are there any you could recommend that we look at? Are there any non-disease sites that you find particularly attractive? You mentioned quality writing, so I thought of the piece Laura Hillebrand wrote for the New Yorker and went to their website, thinking it might be a model. Nope. How about the website of the Immune Deficiency Foundation? It's patient oriented, very serious, very straight. Not defensive. There are probably a lot of disease website that could be discussed before planning one. I agree about the design of "name" site. It hurt my eyes.