New era for ME/CFS research as top cytokine study attracts media headlines
The immune systems of patients who have recently developed ME/CFS look markedly different from those who have been ill for much longer, according to a major new study from Drs. Ian Lipkin and Mady Hornig at Columbia University. This shift in immune function hadn’t been seen before.
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Project: Tackling the UK NHS 'FATIGUE' SERVICES

Discussion in 'Action Alerts and Advocacy' started by Uno, Jun 15, 2014.

  1. Uno

    Uno Senior Member

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    Brighton, United Kingdom
    Hi folks

    For those who do not know me - I run a UK based charity for M.E aiming to raise awareness of the disease and run education projects.

    I have made education packs consisting of an information booklet on M.E to be sent out to GP's. It's a comprehensive breakdown of the illness and a great resource.

    I am sending these out to all the NHS CFS services with a letter asking relevant and important questions about the lack of treatment these services offer but I want to put a question to the patients themselves, I want you all to have your say.

    So if you are under a CFS clinic or have been previously, what would you like to say? What was your experience, good or bad? How could we improve NHS services and what would you like to see offered?

    All contributions welcome!
     
    maryb likes this.

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