Just a random layman question from the above post: My illness most likely started as a result of a flu vaccine I received. Of course GBS is an accepted possible complication of this vaccine (and the flu itself I believe). One of my doctors, Dr. Byron Hyde has long casually hypothesized that acute onset ME, perhaps especially those as a result of flu vaccine reactions, could be either a very low grade GBS. Or some other type of autoimmune reaction that affects the CNS rather than mostly the peripheral nervous system.
If any of this sounds at all possible, do you think that this type of ME would be more amenable to treatment or more resistant to it? How would molecular mimicry add to this? By treatments, I am referring to Rituximab, Enbrel, maybe even Ampligen.
I have a second question if you don't mind: My local GP who knows nothing of ME but is very sympathetic mentioned he could me Enbrel under my very mild psoriasis issues (in order for insurance to cover it). I was hesitant because I'm afraid of getting any worse from this med. But when I first got sick 4 years ago and up until 2 years ago my CRP was so low it was almost undetectable. But since then, I had once instance where it was above normal but then fell back to normal but still slightly higher than before. Also, my ESR began at 1 at the beginning of my illness and as of March 2014 at my last physical, it was at 14 (reference range 0-15). Do you think this information merits a trial of Enbrel?
