Would like to hear someone more knowledgeable`s thoughts on this: I have had M.E. for about 8 years. I got gradually sick, and cannot link my onset to one particular thing, although I have many things that made it progress like infections and a broken ankle with two operations. It was after the accident/operations that my muscle weakness set in, but I had had weird symptoms also before that. In the course of about a year and a half, I had progressed enough little by little to have fully developed ME. The problem is, the progression won`t stop. I am still progressing 8 years later. Often, when I get a new or progressed symptom, it stays forever. It may vary in intensity, but often it also stays in the intensity it came. I don`t relate when people say "oh, I had that symptom for about a year, and it went away". It never goes away for me, i.e. loss of skin sensation, loss of smell, muscle weakness, nautical vertigo, visual snow. Have had every test known to man many times, so I know that it`s nothing else.The last year, it has progressed in an alarming rate, getting worse by the weeks. I am severely depressed and scared at the moment, feeling really hopeless about my situation. I am scared that this form of ME is untreatable in every way, that I will get worse till I am extremely severly ill, and also I find myself questioning if it`s really M.E. I have, since "all" I hear about are relapses and remissions while I almost only progess. Are there any type of knowledge, written or otherwise, about the progressive form? Are there such a thing as progressive M.E.?