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Professor Simon Wessely says he is misunderstood

Discussion in 'General ME/CFS News' started by Daisymay, Nov 27, 2012.

  1. natasa778

    natasa778 Senior Member

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    London UK
    And then W and his cronies manage to convince those people they convinced into thinking they have ME into taking part in their stupid studies.
     
    Wildcat, Min, ukxmrv and 1 other person like this.
  2. biophile

    biophile Places I'd rather be.

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    This thread reminds me of "Don't Let Me Be Misunderstood" by The Animals.

    But I'm just a soul whose intentions are good,
    Oh Lord, please don't let me be misunderstood!

    http://www.azlyrics.com/lyrics/animals/dontletmebemisunderstood.html

     
    alex3619 likes this.
  3. biophile

    biophile Places I'd rather be.

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    The following may be mere non-quantitative opinion about prerogatives, but if it was my child with ME/CFS symptoms in the UK medical environment of psychologisation and dismissal, I would not be automatically assuming they need psychological treatment only because a healthcare professional issued a diagnosis of psychological ill health. Parents also have a responsibility to ensure that their child is given the best treatment available to them, but it is not necessarily clear to anyone involved what that is.

    Although unlikely to negate your concerns, I did find these (bold added):

     
  4. In Vitro Infidelium

    In Vitro Infidelium Guest

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    I certainly wasn't arguing that parents should have to accept diagnosis without question or that parents have no role in establishing the best medical treatment for their chidren - I was responding to the material in the Tymes Trust and BBC documents which start from a position of claim supported only by selective testimony. We don't know what the health status of any of the children of parents contributing to the TT and BBC material actually was, all we know is that parents were claiming that their children exclusively had M.E. The proposition from the parents/TT/BBC was that wrong or inappropriate interventions were forced on children solely because of medical prejudice over M.E - but we have no evidence to support this because the only source of material was parent testimony.

    To be clear, I am not arguing that what the TT and BBC were focussing on, was without merit - undoubtedly children and young people with M.E/CFS have been as exposed to poor medical practice as much as, if not more than, adults with the condition. However that must not blind us to the difficulties that Paediatricians, GPs and Social Workers face when dealing with children and young people who have illnesses that are poorly understood, particularly where a working relationship with parents/carers may have proved difficult to establish. The reality is that in the UK at least, there is a legal and societal expection that professional intervention will take place where there is any suspicion of potential 'mis-care' by parents/carers that is likely to impact a child or young person's health. This is not M.E/CFS specific - it is the way current UK society is.

    Whether one interprets the UK situation as the actions of an overbearing State, or a proper level of protection for children and young people is a matter of perspective. From the M.E/CFS point of view, progress will only be made in improving the situation for children and young people with M.E/CFS where change that reflects wider societal and legal concerns is argued for. Coming up with a fanciful presentation of thousands of kids under threat of imposed secure unit in patient care (which is what some of the postings in this thread appear to amount to), is no basis to achieve real improvement for the treatment and support for children and young people with M.E/CFS, and their carers.

    IVI
     
  5. user9876

    user9876 Senior Member

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    I don't think the issue is that children are treated worse than adults. I think many people with ME have come across difficult and unbelieving doctors. The problem with children is that these doctors (or teachers) can start child protection procedings to force treatment or because they simply don't believe in ME or CFS. The Tymes trust document cases because parents come to them. What they are saying is that there is a repeated problem that is affecting a number of children, they are not giving figures for the proportion of children affected. I think the child protection process can take its toll on a child with severe ME with the activity causing a relapse.

    I do know someone whose child was taken into care and they were accused of FII. Turned out the child didn't have ME but a different chronic condition which could be acurately diagnosed. The GMC were not interested in a complaint against the psychiatrist diagnosing FII.

    I don't think this is the case. There are rules that child protection social workers should follow and there is guidance issued for dealing with ME by charities (AYME and TT) as well as the CMO report. These can get ignored.

    There is a certian paedatrician who says things like "it cann't be CFS its been going on for too long. The original diagnosis was right but I've cured that" (yes by giving them a leaflet) and then goes on to say "I'm not saying that xxx is not tired but I think its functional disassociation from the stress of being ill." She will then push the patient to the local CAHMS group going further than anything written in a letter telling them it pervasive refusal syndrom and the child should be put in a unit in london. And that is seeing the child two years previously and for less than 5 minuites. Yet that is from someone in a position of power.

    I know bad things are happening, I don't know to what proportion of children but I know that they are preventable with better practice. That is the important point.
     
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  6. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    but the system is designed ot prevent any exposure of abuse of children BY THE STATE AND ITS ACTORS!

    the BigPicture (TM) means all, it has drowned out the reality and genuine "common sense", and so we'll see very ugly things indeed, because exposure and thus prevention/spiralling increases of abuse and criminality, have not been stopped now or before.
     
  7. Enid

    Enid Senior Member

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    Oh how sad it is for him - but no doubt he can walk down to shop, rise with some mobility, bowels that do not let down, grin smugly as his contribution to ME has been zero.
     
    heapsreal and Shell like this.

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