Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Prof Stephen Holgate talk to patients/EdMesh: Understanding mechanisms of ME/CFS

Discussion in 'Other Health News and Research' started by Simon, Sep 22, 2014.

  1. ukxmrv

    ukxmrv Senior Member

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    I don't know a patient who has seen him for a couple of years now. Then he was firmly of the opinion that there were no active infections in CFS and whatever had triggered their disease had gone so no tests and no antivirals or immune modulators. He still believed in CBT and GET then I was told.

    Dr Lloyd was best known in Australia by ME patients for

    1. his work with Dr Ian Hickie (who was considered the Australian Simon Wessely)
    2. his work in replacing Myalgic encephalomyelitis with Chronic Fatigue Syndrome in Australia
    3. authorship as part of a group with the terrible 2002 Australian CFS guidelines
     
    Last edited: Sep 25, 2014
    Valentijn likes this.
  2. ukxmrv

    ukxmrv Senior Member

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    From looking at the conference my guess would be that Llloyd was brought across because of this

    "“If you had to choose a place in the body where the problem lies we’re already 99.9% confident the problem is in the brain and we already have some ideas about how the brain might be disturbed to generate this illness,“ Dr Lloyd said."

    As it does seem to fit in with some of the other speakers. Also the lack of doctors and researchers at the conference with an interest in treating viruses in ME and CFS

    http://theconversation.com/chronic-fatigue-focus-shifts-from-viruses-to-the-brain-9713
     
    Last edited: Sep 25, 2014
  3. wastwater

    wastwater Senior Member

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    Maybe they could trial ibrutinib for me/cfs
     

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